MDS is a bone marrow failure disorder
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 7 posts - 1 through 7 (of 7 total)
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  • November 4, 2008 at 7:12 am in reply to: Bone Marrow Transplant #21406
    txplumber
    Member

    Thanks for the emails. I turned 41 over the weekend and have just went through my first regiment of Decitabine. Not feeling that good, lonely more than anything else.

    July 31, 2008 at 9:17 am in reply to: Red Cell transfusions/Ferritan levels #20775
    txplumber
    Member

    what is a chelation?

    July 29, 2008 at 1:05 am in reply to: Red Cell transfusions/Ferritan levels #20773
    txplumber
    Member

    I have had multiple transfusion startins since april of this year. I have rec’d a total of 26 pints. today is the first time they tested my ferritan level

    July 29, 2008 at 12:55 am in reply to: How do you cope? #20929
    txplumber
    Member

    I have similar uneast feeling. My doctor prescribed an anti-depressant. She said it was common in MDS patients. Is anyone else on anti-depressants?

    July 29, 2008 at 12:47 am in reply to: How many of you are transfusion dependent? #20960
    txplumber
    Member

    I have MDS. Rec’d my first transfusion April 11, 2008. Have rec’d 26 pints of blood since than. So tired of the needles. I started on Revlimid 7 days ago

    July 29, 2008 at 12:28 am in reply to: Revlimid (5Q) #20748
    txplumber
    Member

    Started Revlimid 7 days ago. I have crazy sleep patterns and not much of an appetite. Is this common?

    July 29, 2008 at 12:17 am in reply to: MDS in "young" people #21071
    txplumber
    Member

    I am 40 and was diagnosed 2 months ago with MDS. I have had a multiple blood transfusions totaling 26 pints. I just started on Revlimid last week. I set up a website at http://www.IHAVEMDS.com. All that can be done is a bone marrow transplant. Aranesp did not help

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Viewing 7 posts - 1 through 7 (of 7 total)

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