[John Dyer]

I also have flu like symtoms for the last year. Talked with my Dr. and he said MDS or Revlimid will not cause these symtons. I did research and Revlimid will cause body aches. The Revlimid works well so I am still on it. To ease the body aches he gave oxycodone which I don’t like the way it makes feel but I still take 2 pain pills per day. Good luck

[John Dyer]

RIP

[John Dyer]

I was diagnosed with MDS 5qdel July of 2013 and have been on Revlimid since. The Revlimid has stopped the need for transfusions. The only problem I have had is body aches. Good luck with Revlimid.

[John Dyer]

I have mds 5q del and have been on Revlimid for 3 years. It has kept my numbers good. The only problem I have had is body aches. The Dr said it could be the Revlimid or my MDS. I have my blood drawn every month to keep an eye on my numbers. The Dr. told me I will have to take Revlimid the rest of my life or until it stops working. I wish you good luck with your MDS.

John

[John Dyer]

The Dr put me on a anti-histamine but it did not work. I see the Dr.next month maybe we can figure out what is going on. Thanks for the input.

[John Dyer]

Dennise The Revlimid has kept my red and white count good, however my red cells are below normal but Dr. is not worried.
During my 7 days off Revlimid I still have body aches. My Dr. is not sure why I have the body achesand I can’t find anything about the aches except it can be a side effect of Revlimid. I hope we can find somthing about 5qdel mds body aches.

John Dyer

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