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Jimbob
MemberLisa, I am sorry for your loss but you have shown us that even in the tie of such a great loss there can be many gains. I am thankful that you have shared with us. Jim
MemberJodi, when my doctor first saw something was wrong but he didn’t know what, I went through 3 CBCs and 2 BMB in a week. After they were pretty sure it was CMML, I had a CBC every week for about 2 months. They then decided that it was pretty stable and put me on a schedule for once a month. It is more likely that doctors will test less often than more often than what may be best for the patient. I almost wish they had kept it on a weekly basis. I was almost in the normal range on all areas the first week of December 2003 but had an extreme leukemic event on January 2, 2004 with a WBC count of 385,000.
Everyone is different and reacts differently to various treatments.MemberAlthough I am not able to reply or post as often as I would like, I do read severral times a week an I am VERY thankful for the info and support that is given here. Even when there is something that I don’t agree with, it gives me something to check out. I hope and pray that 2005 will be a better year for all of us. Jim
MemberAs soon as I was diagnosed with CMML, my supervisors and the HR people insisted I go on short term diability (at 65%) and six months later set me up for long term disability (at 60%). I am very lucky because it will continue until I am either able to go back to work or for the rest of my life – with full benefits of any other employee. Jim
MemberI was on aranesp after I had a SCT. Doctor said that I no longer had CMML and needed to start building new cells asap. I got it once a month for 3 or 4 months. Jim
MemberWithout good nutrition, the body hass trouble fighting most diseases. With MDS, we have to give ourselves every advantage we can get. Jim
MemberCarrie, Congratuations and best wishes for you – and, of cpurse, your father, too. Jim
MemberEdith, I was diagnosed with CMML in Feb 2003. I used alternative methods of nutriton and supplements mostly overseen by a Naturpathic/acupunturist. It did help me to cleanse and strengthen my body. Unfortunately, I overstressed myself during the last 5 weeks of 2003 and ended up in the hospital the beginning of 2004 after and extreme leukemic event. WBC of 385K with 95% blast and 85% leukemic. In March 2004, I had SCT with brother as donor. Now no CMML found in bone marrow or blood. I am cured but working my way through the side effects of treatments. Jim
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