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Curtis HicksParticipant
Kathy…Kathy…Kathy First of all, I’m no expert regarding MDS…but I was diagnosed with MDS in February 2017. I have been on Vidaza for 26 months. That translates to 260 shots of vidaza..26 shots for nausea and well over 100 blood tests to monitor the actions of vidaza! Your oncologist needs to really know numbers with regard to platelets, WBC, and RBC. I have been caught twice with low platelets and received a transfusion each time. Knock on wood, I feel good! I will be 76 on May 1st. Take care…I wish you well! Curtis E.
Curtis HicksParticipantKATHY…to date Ive had 4 bone marrow biopsies. One with sedation and three without sedation. I can honestly say none of them were any problem at all! It’s a procedure that doesn’t take much time. If it’S done by an expert, you’ll have very little to no pain!
Curtis HicksParticipantI don’t want to scare anyone, but I must admit I was a little aprehensive going into my first BMB. Now that Ive had four BMB at three different hospitals in Dallas, I can honestly say it was a quick in quit out procedure with no pain whatsoever. I started chemo in February of 2017. Now with that said, the drug of choice has been Vidaza. My platelets, wbc and red blood cells always take a dive, the second week after chemo, but by the time the next month rolls around we’re good to go! I’m 75 years old, and to date, never had a sick day. It’s always interesting when you talk with your Oncologist because they always say…Everyone is different!
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