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Susan PaolilliParticipant
Hi Carolyn and Allen! When I was diagnosed 1 yr ago, I was very frustrated when I was told that there were no treatments so I used the NCBI website for my research. If you type in “herbal treatments for thrombocytopenia”, a number of promising research studies will discuss herbal treatments for thrombocytopenia in your case or neutropenia in my case. I have been on the herbal and acupuncture protocol for a while and my blood counts are greatly improved. I hope you can find something useful.
Susan PaolilliParticipantHi! From my research, keep alcohol and wine to a minimum because it stresses the immune system and MDS is all about creating a strong immune system! I am currently on an herbal and acupuncture program which has normalized my neutrophils, HCT and HG so I can say that my condition is related to a strong immune system.
Susan PaolilliParticipantHi Mark! I am 73. I was diagnosed 1 yr ago with abnormal blood cells and low neutrophils (neutropenia). The only reason I discovered the problem was that I was constantly getting a cold! Imagine my surprise when I was told by 3 doctors that there was no treatment for MDS but come back in 6 months so they can follow the progression! I am not one to take a back seat in life so I started researching and learning about this condition and how there are treatment options in “alt med”. I am on an herbal and acupuncture protocol which has normalized my neutrophils, HCT, and HG. Although I still have slightly low whites, my hematologist tells me I am now stable. I am not deluded that I am cured because I know that MDS is related to age and immune system strength but I have found some treatments that have worked for me so far. I hope this helps.
Susan PaolilliParticipantI am 73. I was diagnosed 1 year ago when the blood work showed abnormal blood cells and neutropenia. I have had no previous chemotherapy or radiation. My hematologist and two other doctors offered no treatment options and I was told to come back in 6 months for another blood test. I resarched and started on an herbal protocol and acupuncture when I discovered that the diagnosis was MDS. I don’t know what triggers the blood precursers to change but I believe that it is related to old age and the health of the immune system. I believe I caught my condition early because my protocol has normalized my neutropenia. My HCT an HG is in normal range for now and there are no abnormal blood cells. I hope my experience will give some hope to others with MDS.
Susan PaolilliParticipantIf there is a low neutrophil count then the nobody can’t deal with inflammation or infection.
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