MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 4 posts - 136 through 139 (of 139 total)
  • Author
    Posts
  • in reply to: I need some information #11370
    franm
    Member

    Thanks Eve:

    I will keep an eye on him and hope that the cold doesn’t get any worst.

    Good luck with your dad.

    Franm

    in reply to: I need some information #11368
    franm
    Member

    Hi all my friends: How long do we put our life on hold?

    Jim found out that he had MDS, after a BMB that was done last August. He went to 3 different doc and they all told him to start Vidaza. The last one he went to was in November and she said that she didn’t want to start any treatment as yet because his bc isn’t bad enough. I listed his last bc several weeks ago. His next appointment with Oncologist is Feb. 20th. Will know more next month I hope. In the meantime I came down with a cold and he caught my cold now. It seems to be in his chest and that really worries me. But I guess there isn’t much I can do. Just hope a Pray that things get better .

    I Pray for all of you and hope that everyone here get’s to be in remission.

    Thank you again for your surrport and help. I will write to you again next month after he has his blood test again.

    Thanks again people and good luck to you all.

    Franm

    in reply to: I need some information #11361
    franm
    Member

    I still need some help here. Does anyone have and idea’s on what my huband can do. He is sitting in Limbo now. The MD thinks he should wait for any treatment. In August of last year we saw 2 different Oncologist and both said that he should start Vidaza at that time. But then we saw another MD and she said his blood cells weren’t low enough for his to start. I am affraid that if he waits until he is really sick that the Vidaza won’t help at all.

    Any thoughts on this matter.

    Please help if you can with words of wisdom.

    Thanks…Jim’s wife

    in reply to: I need some information #11359
    franm
    Member

    Hi Neil:
    Thanks for talking to me. My husband’s history. He is 73 years old. They found on routine blood work in early 2005 that his platelet and white blood cell count were low. Initial workup showed no specific etiology and he ultimately had a bone marrow aspirate and biopsy performed on 8/05/05. This demonstrated refratory anemia with excess blasts, with a blast percentage of 10%. Cytogenetics showed trisomy 8. He also had triple by-pass surgery 2 years ago as well as Type 2 diabetes.

Viewing 4 posts - 136 through 139 (of 139 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert