MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: CMML Anyone ?? #8006
    Indiana Jack
    Member

    I too would be interested in a CMML mailing list. My circumstance continues to be one of ‘watch & wait’ with monthly CBC’s and visits to a Center of Excellence 4 to 6 times per year.

    in reply to: Revlimid FDA Review #6705
    Indiana Jack
    Member

    Good job. Please add my name as well.

    John C. Schuster
    South Bend, IN

    in reply to: Made it to first anniversary #5174
    Indiana Jack
    Member

    Jim,
    I’m delighted for you . . . wonderful news. We did
    that cruise five years ago, shortly after my lymph node dissection. It’s the only cruise I’ve ever taken and I enjoyed it thoroughly. The scenery was wonderful, especially for a midwesterner.

    IN Jack

    in reply to: MD Anderson #5114
    Indiana Jack
    Member

    Jack,
    I too am still in the same, wait-and-see mode. I had a BMAB at Rush in January and my bone marrow blasts were up to 29%, with peripheral blood blasts at 4%. Since other blood numbers weren’t changing and I had no other new symptoms, the determination was to wait another sixty days. Last week, my peripheral blood blast was 0% and my other blood numbers basically unchanged. RBC 4.33, HGB 11.5, PLT 221, WBC 5.94 and Monocytes 22.2%. The doctor was pleased (surprised?) and continued to advise no intervention at this time.

    Like you, my only real complaint is fatigue, no doubt occasioned by anemia. I take Esberitox,an immune system supplement and have had neither a cold nor an infection in six months. I still work, but at a greatly reduced pace.

    I’m extremely grateful, especially in light of all the bad news on the board this week.

    Hang in there. IN Jack

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