[Kathie Wolf]

After consulting with Stanford oncologist from their BMT unit, my husband has decided to stop Vidaza for awhile. His oncologist will monitor labs and use his bone marrow biopsies to guide further care. He is currently doing well. Will see how this all goes, uncharted territory per his oncologist.

[Kathie Wolf]

Thanks Rita for your response. My husband had a great response to Vidaza, completely in remission currently after 1 year of monthly treatments. His labs have been stable for about the last 5 months. (Hemoglobin, platelets and white cells) White blood cells were the last to stabilize. Good luck, let me know how things go..,

[Kathie Wolf]

Thanks. Our oncologist through Kaiser in California trained at Stanford and is well connected to them. Would all centers have similar recommendations if we asked for a second option from another Center?

[Kathie Wolf]

Aureta, how did this work out for you? My hubby has been on Vidaza for 12 months, labs are all normal,and he is in remission. His oncologist is offering him a vacation and just follow with labs. She has told him he can do,either, no wrong answer…

[Kathie Wolf]

We started with Procrit injections at home and they worked well initially, too well as Hgb rose to over 10. Because of the risk of blood clots, stopped for a few months. Restarted at a lower dose but never achieved that level again before developing a small clot in a peripheral vein. During all of the time was able to maintain most activities, even hiking until the last few months before the clot. Started Vidaza and had a quick response and after a a year am in remission. Yes! The medications are worth it in our case. This disease is a roller coaster for sure, but many positive changes keep coming along. Good luck!

[Kathie Wolf]

My husband, age 73, is being referred to Stanford for a consultation for a bone marrow transplant. Jeff, could he call you also?

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