MDS is a bone marrow failure disorder
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • October 26, 2018 at 9:59 am in reply to: Should I ask my wife's Dr. her expected life span? #44305
    Annette Cook
    Participant

    I’m pretty much in the same situation with my husband, although his MDS has advanced to AML. He does not want to try a trial and is not eligible for further treatment because of his age (70). Just 1 week ago Drs. Told us he had days, maybe weeks but not months to live. But he has responded to steroids and IVIG, miraculously and they don’t know why. You might try and pin your doctor down about it. At that point you may be able to get hospice to help both of you. If you think talking about this will upset her more than she already is or make her lose hope, then don’t do it.

    October 24, 2018 at 9:19 am in reply to: Good Dr Visit #44279
    Annette Cook
    Participant

    Great News, Alan! In this situation we have to accept joy and spread joy just as you’ve done.

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