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poobail
MemberI, too, have been worrying about them. It didn’t sound good the last time I exchanged emails with Barb. I’m so sorry, will keep praying…
MargaretMemberBarbra, I’m so sorry to hear this about Ron. I read that hydrea can have good results, but I don’t have anything good to say about hydrea from our personal experience. My Mom tried it for 6 days a week ago, and her counts have dropped down, and now we are facing the end. She had a platelets tx and blood last week, but has not been making any new platelets as she had a nose bleed all day Sat. Treatment wise, she was offered mylotarg, too, but didn’t like the low odds with the bad side effects, plus it would most likely kill her liver and she’s very protective of it after having a liver disease for 20 yrs now.
I pray you find a way to decide what to do, I know in our family it has been absolutely heart wrenching no matter which way you look at it. Good luck and take care of yourselves. Also a practical note, albeit depressing, please discuss as much as you can with him now cuz if it’s as aggressive as my Mom’s, he may be too sleepy to communicate with you. Margaret
MemberSarah,
I’m so sorry to hear about your loss. Please be gentle with yourself at this hard time, it will be good and bad, probably all at once. Take care,
MargaretMemberThanks for the info. I had noticed Carrie’s info and wanted to do it, too. Now I’m up to date!
MemberHi everybody, thanks for your positive thoughts and prayers, but it’s not to be. The dr said late today that the preliminary results from her bmb shows a minimum of 50% blasts and it may be as high as 70%. It looks like the vidaza did not work and now she has to decide whether to go forward with the myletarg (not sure how to spell it). They told us before it only had a 15% chance of remission, so she hasn’t had any desire to try it. she may change her mind…
Thanks again, Margaret -
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