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simplistic007
MemberHello newbie, I wish you the best w/ your mom and your family. It is a scary thing. I never heard of MDS up until I had been diagnosed and almost had to live a transplantation last August, 2010. Somehow, my blood levels although weak were not considered weak enough to go through a transplantation. God spare me that one. I have to do a bone marrow biopsy every year and I am due in August, 2011 for mine. I am very nervous because they did say that although I got the "go" card, this can change at any time in my life. Scary thought. I am now diagnoses as having refractory anemia. My levels change all the time, but not enough to get a blood transfusion, but enough for doctors to keep an eye because my bone marrow does come back w/ clusters and some abnormalities. Thanks for sharing your story. Keep in touch. Simplistic007
MemberIt will be okay. Stay focus and positive. You have come along this far. Hang in there my friend. Take care and thank you so ever much for keeping us all posted. God Bless.
simplistic007MemberMay God be w/ you. Be strong. Good Luck.
Simplistic007MemberBob, this is great news. You are a great inspiration to me. Just about the time you went in for your transplantation my doctors were debating whether I had to go through transplantation myself. I was very lucky and thank God I was spared this process. I am being monitored and so far still good, but of course, it will always be in the back of my mind as to whether one day I will need to or not. One never knows and I cannot worry about it, but I have followed your recovery and you are a brave and inspirational person to me. I am so glad you are doing well. Keep up the strength, hope and faith and you will be good. God Bless.
Simplistic007MemberI currently take Tremadol for my Fibromyalgia and Rheumatoid symptoms. I just started it like 3 weeks ago. So far it helps for a few hours. I currently have had no side effects. Hopefully it will continue this way. Good Luck.
Simplistic007MemberHappy B-Day and Happy Anniversary. God Bless.
MemberBob, congratulations. I truly admire your strength and courage. This is great news. I am so glad to hear you are doing better each day. Keep strong, stay strong. One day at a time. God Bless. 🙂
Simplistic007MemberChris may the Lord be with you and keep you strong. You are in my thoughts and prayers. All things are possible through God. God Bless.
Simplistic007MemberJersey Guy it is so good to hear from you and always keeping us posted. God be with you and keep you strong.
Simplistic007
MemberChris,
Best of luck and God be with you.
simplistic007MemberHi Jersey Guy,
I am so happy to hear this news. You have been so strong along the way and we all appreciate your keeping us updated as you progress along. Keep up the good work and again, "congrats."
p.s. As for relapse, I think anytime you have been diagnosed with MDS, anything can be possible, but for now, not to worry and enjoy your good results and don’t worry about tomorrow. Live for today. God Bless. Happy New Year!!! It is a great start already.
simplistic007
MemberMary4Mike,
Thank you for your kind words. I have to go every 3 months for blood work. I am still anemic but platelets are good so they are not too concern as far as MDS. They just continue to diagnose it as chronic anemia. The only thing I do notice is that although I am very active, I do run out of energy and find myself tired. Even if I nap, I still feel tired later but not sure if this has to do with my fibromylgia and the lack of not sleeping through the night. I always keep in touch with this forum because a part of me still belongs here. I learn from each and one of you. This is something I could have been going through at this moment, but God has spared me this time. My heart and prayers still go out to all that are living this experience on this forum and I pray for a speedy successful recovery. Thank you for your support. God Bless and Merry Christmas and a prosperous and healthier New Year’s.
Simplistic007MemberHi Smurf,
I understand your fears very much. I was diagnosed with MDS back in July. The bone marrow came back with beginning of MDS, but then I had a repeat bone marrow in August and it came back normal. They diagnosed me with Chronic Anemia and at this time the doctor stated that I had no MDS. There is still some abnormality on the bone marrow but not enough to classify it as MDS. It is scary because this could change at any given time in my life. Just to know that the bone marrow was abnormal in July and I had a 2nd opinion state the same scares me. Although I have been diagnosed as of now with chronic anemia, it still scares me to think that the abnormal bone marrow gene is lingering waiting to see what happens. My blood levels are always low and I am always anemic but platelets are good so I guess that is good news. I had the biggest scare this past Summer. I was actually suppose to be in transplantation process right now, but thank the good Lord he spared me this process. Please pray and have a lot of faith because it is the only thing that keeps you sane and able to cope with this situation. Best of luck to you and let’s pray for all on this forum that we continue to battle and beat this illness. Merry Christmas and a healthier New Year. God Bless.
Simplistic007MemberJersey Guy, I am so happy to hear from you. We were all worried and concerned. Save your strength and concentrate on getting better. You are almost there. Thank you for taking the time to keep us posted throughout this trial period. God Bless You and stay strong. Look forward to hearing from you with more good updates soon. For now our friend, rest, and leave the rest to God. You are in good hands.
Ciao,
Simplistic007MemberI hope Jersey Guy is progressing well. I will keep him in my thoughts and prayers and hope for the best. Jersey Guy, we are all here for you. Let us know how you are doing as soon as you can.
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Simplistic007 -
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