[Barb]

Barbra,
We’re thinking of you and your daughter, and praying for strength and peace.
I’ve thought several times since learning of Ron’s death that maybe he and Dad have met and are enjoying each other in person.
Dad was cremated, too. I hadn’t ever known anyone who was, and was pretty uncomfortable with it at first – still am a little, I guess. But, it was what he wanted (and Mom will be, too, when the time comes).
I’m so glad that your daughter was able to be with you the last few days. It is exhausting work – both physically and emotionally – but, is a labor of love. Don’t worry about her memories. It may be hard now, but I’m sure she is thankful that she was able to be there with both of you. It is a tremendously intimate time.
God bless you, Barbra.
~Barb M.

[Barb]

Barbra and Ron,
What a beautiful tribute to Neil – and so very true. I think most of us probably have Neil to thank for helping us move from those first feelings of devastation to a stage where we could mobilize our strength and DO something. Neil, you’ll never know how much hope you have given to others over the years. God bless you!

And, Ron and Barbra, the act of recogizing Neil’s contributions and moving to act out your feelings are a tribute to the kind of people YOU are. From the moment you joined this forum, you have asked questions some hadn’t thought of, shared information and answers with others who were searching, and expressed your outrage, hope, fears, strength, and love with clarity and sincerity – and even humor – and those postings have been read and felt and understood by each of us in this electronic community.

Ron, I think you and my dad have a lot in common. Incredible inner strength and faith, the love of a good woman, the ability to keep your priorities in order, and a wonderful sense of humor to get you and your family through the tough days. Your nickname for him – the flagship – was a terrific day-brightener for him.
Thank you for taking the time and energy to add your contribution to this forum.

Thinking of you,
Barb M.

[Barb]

Barbra and Ron,
I checked the forum tonight to see how you were doing and am sorry to learn about Ron’s relapse. Know that my thoughts and prayers are with you both.
Barb M.

[Barb]

Moffitt is also where Dr. Alan List is now – he is wonderful! He was Dad’s dr. for over 2 years when List was in Arizona.
~Barb

[Barb]

My dad was told that Gleevec is particularly effective when the patient has a chromosonal abnormality that the dr. termed: 5/12 translocation.
~Barb M.

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