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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • January 18, 2005 at 3:31 pm in reply to: My BMT #3372
    Lexingtongrn
    Member

    Marsha…I’m so glad to hear from you!
    We’re leaving to go to Durham,NC for a BMT. He’ll have to stay there for 4 months or so. We just can’t wait for this to be over with so we’ll know what recovery is like. Your posting is very helpful. I’m glad to hear you think it’s worth it. Take care of yourself!

    January 14, 2005 at 9:16 pm in reply to: New to MDS #3246
    Lexingtongrn
    Member

    My friend is 65 and has CMML. He has taken Vidaza shots since July ’04. The doctor at Duke in Durham,NC told him the Vidaza shots just bought him some time and the only cure is a bone marrow transplant. We’re beginning the chemotherapy next week that you take before the transplant. He has a younger brother that is a perfect match.

    January 10, 2005 at 5:07 pm in reply to: Vidaza reaction? Is this normal? #3058
    Lexingtongrn
    Member

    My friend gets very weak,pale and naps a lot during Vidaza shots and almost a whole week after. Just as he seems to be slowly pulling out of this slump, it’s time to get shots again.

    January 6, 2005 at 7:35 pm in reply to: Thank you to all participants #2680
    Lexingtongrn
    Member

    Pam…I completely agree! I’ve had so many questions answered by just reading this forum every day. I’ve learned much more this way than any other.

    December 31, 2004 at 6:31 pm in reply to: Dad a "rainy day", searching NBMR for donor #2507
    Lexingtongrn
    Member

    Pam…my friend takes Vidaza. He has to take the nausea pill before and after the shots and it works very well. The shots do seem to increase the fatigue but when the shots are over that is back to normal.

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