MDS is a bone marrow failure disorder
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Viewing 11 posts - 1 through 11 (of 11 total)
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  • in reply to: The END is near… #13286
    Vasilios2
    Member

    Thank you all for your support.

    in reply to: Can someone explain white cell breakdown? #9589
    Vasilios2
    Member

    Patti, the number for lympocytes is a % of total WBC. Thus it can be 90% and within Normal limits. As Neil correctly said an increase of WBC count over the normal limits may indicate problems
    Hope this helps

    in reply to: Revlimid FDA Review #6717
    Vasilios2
    Member

    Nine too
    Vasilios Nassiopoulos

    in reply to: Prognosis #6570
    Vasilios2
    Member

    Welcome! Key question is how you feel not only the numbers. Also the classification of MDS. But again from several conversations that I had with my father’s docs they all tell me that if he feels good that is the important thing. You “sound” great. Do not give up and live your life to the fullest. It sounds that you have many years ahead of you
    Good luck
    Vasilios

    Father (78) diagnosed with MDS no blasts. Doing well no treatments, no chromosome abn

    in reply to: Revlimid – anyone heard of this? #6285
    Vasilios2
    Member

    hi, I do have a Question on Revlimid. Obviously it looks very interesting and as a light at the end of the tunnel, but will it only work for people with -5q abnormality? Will they alos give it to others?
    Hope they do give it to all. if you know please let me know

    ————————-
    father Christos (78) diagnosed with MDS multilineage cytopenia no chromosome abnormalities, no tx yet doing well in Greece followed by a center of excellence

    in reply to: MDS Awareness bracelets #6189
    Vasilios2
    Member

    Thank you!

    in reply to: MDS Awareness bracelets #6187
    Vasilios2
    Member

    Terri, I went to the website….could not find it. Any idea under what topic? Thank you!.
    My father is doing good. No tx so far. Feels good. I will see him this summer when I go to Greece
    Hope Bob is doing great!

    in reply to: We lost the fight #5771
    Vasilios2
    Member

    I am so sorry. God bless

    in reply to: My father has MDS (?) #5662
    Vasilios2
    Member

    I hope so. I am waiting on the florocytometry. What will this test show? what are they looking for? anyone who knows?

    in reply to: My father has MDS (?) #5660
    Vasilios2
    Member

    Hi, after the bone marrow test they said refractory cytopenia with multilineage dysplasia. No mention of excess blasts

    in reply to: My father has MDS (?) #5656
    Vasilios2
    Member

    Thank you for your support. Terri any more vitamins that can help?

Viewing 11 posts - 1 through 11 (of 11 total)

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