[Danielle Torcini]

I’m sorry for your loss Doug. We lost my father to MDS on 9/8/18 after being diagnosed with RAEB-2 in January. He did great with his Vidaza treatments until the beginning of August, something wasn’t quite right. He was more tired. He was short of breath. It took them a week to figure out that he had AML in his liver (not seen in the blood or bone marrow). Within a week he was dead. It was the most aggressive thing I have ever seen.

[Danielle Torcini]

Thanks for your reply Charles. A PE(pulmonary embolism) was what I was referring to. Right now my Dad is awaiting liver biopsy results. His bili keeps climbing and has no know liver disease. Prayers to you.

[Danielle Torcini]

Hi Rose,
My Dad was dx 1/2018 with MDS at age 73. What we have seen so far is this is a rollercoaster, with lab values and how he feels changing with every chemo cycle. Pain in the legs is common with Vidaza. Also, he will get very tired due to anemia. I agree with the others, call a center of excellence. We are fortunate enough to have 2 in our city. Hang in there. This will be difficult for both of you. God bless.

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