MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: MDS & AML Participants Needed #67016
    Kathleen Lopez
    Participant

    If you still need participants for Project 4, I am available with an MDS dx.

    Thank you

    in reply to: Living in a home with stairs #66917
    Kathleen Lopez
    Participant

    In order to help evaluate if moving to a one story would be beneficial, maybe you could move into an Air B-N for 30 days, or some other form of one month rental and see if he feels better or about the same. You could also check with family and friends that live near by if you could stay with them for just a month because you need help making this very important decision. Just a thought! Good luck!

    in reply to: Introduction #66851
    Kathleen Lopez
    Participant

    Bexar,
    Thank you for your reply and for taking the time to look up information on Dysmegakaryopoesis!
    Very kind of you.

    In answer to your question, my platelets are low but are normally shaped. My doc said that was usual. It’s the megakayrocytes that is abnormally shaped so I just “assumed” my platelets would be too but he said no. My platelets went up two weeks ago, so that made me happy! Actually all my counts went up. Does that happen often? To have really low counts then suddenly, without treatment they go up? I’m wondering if not drinking before the lab test affects the count. I had not be drinking the day of the test. Hmmmm. Something I’ll google. Hope it doesnt. I like when the counts go up!

    Sounds like you’ve had quite the journey and have alot to offer those of us that are new. Thank you again for your response.

    in reply to: Vitamin C IV Therapy #66818
    Kathleen Lopez
    Participant

    Hi Paul,

    When ever I see/read/hear about “natural” treatments the first thing I do is to see if it has been studied and found to be true or not true or even not sure.

    I use this link https://pubmed.ncbi.nlm.nih.gov/

    AND I speak to my doctor.

    Good luck!

Viewing 4 posts - 1 through 4 (of 4 total)

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