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SusanJ
MemberButch & Lynn,
My deepest sympathy to both of you. My dad was diagnosed with MDS in Jan. 06. He had his second bone marrow biopsy yesterday and we will get the results next Monday. The doctor thinks that it has probably progressed to AML. I am terrified, but everytime I visit this board, I leave feeling a little better. I want my dad to live to be 100. This has been a kick in the gut for me. I’m not sure that I will have the strength to bear it. God bless you both. I will keep you in my prayers.
Susan
MemberDear Lynette, Suzanne, & Caroline,
God bless you! Thank you for your encouraging words. I always feel better after I come to this forum. Everything else I read on the internet scares me so much! This is so hard for me. I am having to learn to think in terms of minutes, hours, and days, not years. I am having to rearrange everything. I have always known that we should live in the present because none of us are promised tomorrow, but now that I’m truly having to do that, it’s hard. Bless you all, my new friends. I love you.
MemberLori,
You are so right. My dad had another bone marrow biopsy this morning and we will learn the results next Monday. He has been getting shots of Aranesp and received his first blood transfusion last week. I am so afraid that this biopsy will show that he has progressed to leukemia. I have been trying to “wish” this away but it’s not going away. I’ve been asking “why my dad, he’s only 73” then I think why should we be spared going through this, because there are so many others even younger going through it. I know in my head that none of us are promised tomorrow and we should be thankful for every day. This is just so hard. I want him to live to be 100. I pray for all of you too. God bless.
Susan
MemberLori,
MemberDear Fran,
My dad has a very good appetite and he hasn’t lost any weight. His main complaint is being very short of breath and tires very quickly. He has been working every day until this infection. He hasn’t worked in 2 weeks. He wants to try to work about 3 days a week but I don’t know if he will be able to. He has no pain that I know of. This is so hard for me. I know it is for you also. I will pray for you and Jim. Keep in touch.
Susan
MemberThank you Patti. I will look in my notes when I get home to see which chromosome it is. I tell you, I feel like I am going to lose my mind worrying. I was so frantic thinking this might be passed on. You have eased my mind on that one. So it’s this disease that caused chromosomes to go crazy?
MemberThank you again so much for the encouraging words. I will pray for your dad. God bless you my new friend!
MemberRackon,
Thank you for the encouragement. How long has your dad had this disease? I am praying that my dad can live with this for many more years. Of course, he has heart problems too, so only time will tell. Right now he is feeling well except for dealing with a round of gout in his shoulder.
He has a lot of problems with gout in different places. That shouldn’t have anything to do with this disease should it?MemberTracy,
Your situation sounds almost exactly like mine. My 73-year-old dad was diagnosed about 2 weeks ago with this disease that we had never heard of before. I nearly lost my mind with worry at first but have come to a certain peace about it now. This forum has helped to calm my nerves a lot. Everyone has been so helpful and nice. My dad, like yours, has always been very active and is still working every day. He has always walked at least 3 miles every day until shortness of breath kicked in. He also has congestive heart failure, and I’m not sure how these 2 conditions will work for/against each other. He has started to try to walk again a little each day. He has to stop to rest now though, he didn’t before. This has been so hard to take. It helps to know that we will walk this walk together. You are not alone as I learned from this forum. I will pray for you and your dad daily. God bless you.
Susan
MemberSarah,
I am so very, very sorry. Chemo is a horrible thing, but we want to try everything to save the people we love. This is so unfair. I will keep you in my prayers. God bless you.
MemberSarah,
MemberThanks Caroline, to you and all of the other good people on this forum. I am beginning to feel a sense of peace and a little hope about this disease. This has consumed my life ever since we found out. I wanted to fix it and make it go away, but I have realized that I can’t. I have to learn to take it one day at a time and trust in God’s perfect will. Thanks to all of you new friends for being so supportive. God bless all of you.
MemberThanks Caroline. How long has your dad had this and how old is he? My dad is 73 and still working every day. He has always been very active, has walked 3 miles a day until just recently. Last time he tried to walk he only went about a city block and got short of breath. This is a sypmtom of both congestive heart failure (which he also has) and MDS. He hasn’t tried walking that far since he came home from the hospital about 2 weeks ago because he is still weak and it has been very cold. I realize that we are going to have to take this one day at a time. I wish I could quit my job and be there more for my parents, but I can’t. I look forward to discussing things with you. It appears that we have a lot in common. Bless you!
MemberGod bless you, Dennis & Caroline. Thank you both for the encouraging words. I know I must sound like a crazy woman! It seems that the only positive information I get is from this forum. Thanks Dennis, for the helpful link. The story was very encouraging. I just want someone to tell me that this won’t kill my daddy. I know in my head that no one can promise me that, but my heart is a different story. But then I know that none of us is promised tomorrow and we should live each day to the fullest. Dealing with something like this really brings that into prospective doesn’t it? Thanks for being patient with me, listening and replying to me. I will try to have a positive attitude. It really helps knowing others share in what my family is experiencing. I will keep all of you in my prayers.
MemberThanks Dennis. I wish you all the best and will pray for you. That is all that is getting me through this, prayer. My dad has heart problems too and is not a candidate for a BMT. Right now he will get a shot every 2 weeks and they will test his blood. He will see the doctor once a month. I don’t know how the heart problems will work with/against the MDS. Please pray for him, he is the best daddy in the world.
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