MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 1 through 15 (of 19 total)
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  • in reply to: 5 Years today! #21862

    THANK YOU Mary! And Yes……..God is Good!
    Billy’s Page

    in reply to: On This Date…… #20325
    Quote:
    Originally posted by choijk:
    Bill, I have been following billys posts. What a miracle! Happy b day Billy! To many more to come!

    Happy early b day to u too Jim!

    Hi J,

    Good to see you again! Thanks for all your support. Hope all is well eith you, and your’s.

    Bill

    in reply to: On This Date…… #20322
    Quote:
    Originally posted by Jimbob:
    Happy 4th re-Birthday to Billy. Thank you, Bill, for sharing his story with us for the past 5+ years. You both have been great inspirations for many.

    My anniversary is 25 days away and I do know it was a rebirth. We would not still be here if not for the SCT. Thank God for donors! And the skill of the doctors and other healthcare providers, too.
    Jim

    Thanks Jim. You and everyone here on the Forum have been ‘Pillers of strength’ for me these past 4 years. I can not tell you guy’s how many hours I spent reading your stories. I know our situation was different, but MDS is MDS no matter how you look at it. I was able to teach my Son how to shave, I was able to teach my Son how to drive. I was told he wouldn’t have survived 3 months without a transplant. We found a perfect match in 3 days, and the rest is a miracle.

    Happy re-Birthday to you too Jim!(in advance!)It is a wonderful thing.

    Bill

    in reply to: On This Date…… #20320
    Quote:
    Originally posted by eve:
    hi bill

    i am so glad to hear that billy is doing so well and able to enjoy life as an active young boy should

    eve

    As always…….THANK YOU!

    Bill

    in reply to: My baby has MDS #18149

    Hello Rachel,
    I hope this entry finds you well. As you’ve probably learned by now, no 2 case’s are alike, and you and your precious Delaney are in My Prayer’s. My Son’s MDS was secondary due to his bone cancer treatment (Chemo VP-16), and from our experience it is becoming a more frequent occurance in children fighting cancer. There have been very little advance’s made in the treatment of childhood cancer over the past 20+ years, and the children continue to suffer because of it. You need to take all you hear with a ‘grain of salt’, and trust that a GREAT donor match will be found. Trust in what your Dr’s have to offer, as MDS in a 15 mo old child is almost unheard of. Believe that your precious child will overcome this disease, and be strong for her. Please feel free to contact me (us) for any reason. You can find our info on Billy’s Info Page ( HERE ).
    Be Well,

    Billy’s Dad {Bill}

    in reply to: MDS and BMT … any successes??? #16763

    ….That’s just FANTASTIC news! a 9/10 match!! We will continue to hold you in our Hearts.

    Bill

    in reply to: I ask you for a prayer… #17220

    ………Miracle’s DO happen. You are certainly in Our Prayer’s.

    Be Well,
    Bill

    in reply to: 3 Years Today! #17263

    Hello Nervous Aunt.

    Look for my PM to you….and thank you for your support *wink*

    Bill

    in reply to: From Me to all #17258

    …..Very moving web site Kiddo, thanks for sharing.

    Bill

    in reply to: Approaching 3 years! #17076

    ……Thanks Kiddo, Prayer’s “do” matter.

    Bill

    in reply to: MDS and BMT … any successes??? #16761

    Hello,
    I have one of the GREATEST success Stories. Next month (Mar. 4th) will be 3 years since our Son received a bone marrow transplant from an un-related Donor who was a 10/10 match. You can read all about Billy’s Story by visiting Billy’s Page . I am currently on Page #89!

    Be Well,

    Billy’s Dad {Bill}

    in reply to: time for a break #13852

    …….We need ‘ya Kiddo! Take a deep breath, and climb back on the Cure MDS train.

    Bill

    in reply to: Counts Climbed a little #11680

    Hey Kiddo,
    We’re think’in about you guy’s *wink*

    Be Well,

    Billy’s Dad {Bill}

    in reply to: New to MDS #11583

    Hello Sandy B.

    Welcome to the World of MDS. I’m sorry you have to be here………..BUT,

    You are truly in the “Right Place” for answers. Don’t be afraid to ask for help, it flow’s freely here.

    Be Well, my best to you and Yours.

    Bill

    Billy’s Page

    in reply to: Quick update *wink* #11353

    Thank you ALL !!

    Hey Neil, Did I tell ‘ya that Billy’s BM Donor is from Rochester, Mn., and that his Wife works at the Mayo Clinic? Also, they are expecting their 1st child, and the due date is Billy’s Birthday April 18th. That would make them 14 years apart. Also, Billy and George (Donor) are 14 years apart. What a crazy coincidence.huh!

Viewing 15 posts - 1 through 15 (of 19 total)

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