[jfensterer]

Linda,

Yes, my Mom did get to 5 at some points. You do really need to remember. As long as you are doing everything you can….that is all you can do. But your Mom knows you are there for her and she’ll probably never have all of the words to thank you. This disease is a rough one. Just do the best you can…..your Mom & God will know this.

I have to tell you, even though Mom’s bruises did not hurt her…..they were worse on my eyes just looking at them-
I’ll say a prayer for you and your Mom.
Warm Regards-Jan

[jfensterer]

Alex,

My dearest friend I will ever have ( my Mom) passed away at 10:28pm on April 15th. She was diagnosed with MDS in MArch of 2005- It started out alright, then we tried Revlimed, then she was transfusion dependent, then her plateletts dropped, then she had terrible bruises all over her body….and of course ther was the Neupo shots every Tues & Fri…along with 2 shots of Aranesp every month. When she got those shots, they kicked her bone marrow into high gear & she was flu-like at least 2 days a week for 2 years.

I am an only child, I do not have my Dad in my life, but I am married & have a wonderful 8 year old son. I am 43, I believe that my Mom did get to be there for what she and I needed….
But, you know….I will think of that dear, wonderful, woman until the day I die. This was my worst fear….not having Mom. I was able to look at some video footage that I shot of her from before she was ill….When I watched it, I was happy to see her, sad that she was no longer with me…..but, I looked at her very closely….and saw that she was happy, HEALTHY and younger.
I believe with every fiber of my being that she is now like that….if not better.

I know that does not help for right now……but, believe that your Mom is very well and will be with you where ever you go and see and be happy with all that you do.

God Bless the soul of your Mom & the pain that I know that you feel in your chest…….

[jfensterer]

I am so very sorry about your Dad. I lost my Mom to AML on April 15th. I know with my whole heart that she is whole, healthy and happy. I do miss her so very much…..but, she always told me to have faith. I have faith that your Dad is whole, happy and healthy as well.
God Bless, Jan

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Campbell,

My Mom passed away at 10:28pm, on April 15th. She was diagnosed 2 years ago with MDS, tried Revlimid, got transfused, lost weight, got so very bruised & most of all….was & is my hero.
She passed away very peacefully after her kidneys failed….and honestly….she passed away beautifully. We buried her on her 77th birthday & sent up 77 white balloons with white ribbons and notes.
I feel her in my heart and I know she is whole, healthy and happy. I am an only child & I miss this woman badly…..but, not bad enough to have her suffer anymore……God, I miss her…..
When she passed, I held her hand, my other hand was on her heart & my husband held her other hand…..the dogs were all around her……
I know in my heart of hearts, they are happy, well and whole-
My prayers to you-Jan

[jfensterer]

Wendy-
My Mom has had MDS since March of 2005. She is a non-responder to Revlimed & we are currently looking into options other than Exjade to lower her iron & another med to get the bone marrow working better. I really never write on this, except to get info.

But, I do understand how you feel, I wake up every morning wondering what the day will hold for my Mom. I love her more than I am able to show & I wish I could take this dreadful disease away from her. My prayers are with you & I understand how you feel.
God Bless

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