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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 9 posts - 1 through 9 (of 9 total)
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    Posts
  • March 20, 2008 at 2:59 pm in reply to: SPAM MESSAGES: PLEASE READ #10939
    mdsingulfbreeze
    Member

    Urgent** Is there anyway we can delete these spam’s? very disgusting!!

    March 20, 2008 at 2:57 pm in reply to: SPAM MESSAGES: PLEASE READ #10938
    mdsingulfbreeze
    Member

    Please check message fron today that says FREE****. Very valgur!!

    February 8, 2008 at 2:00 pm in reply to: My Dad #18445
    mdsingulfbreeze
    Member

    So sorry about your loss. May the good memories bring peace to you and your family.

    God Bless

    February 6, 2008 at 11:00 pm in reply to: PATIENTS OVER 40 #20177
    mdsingulfbreeze
    Member

    Hi Neil,

    We have went to Moffitt for 2nd opinion and they suggest to wait as well. We are seeing Dr Hugo Fernandez there. They are saying unrelated donor is risky over 40 and want him to wait because of the mortality rate. They said HIP replace was not an option at this time and would not be until after transplant.

    February 6, 2008 at 4:25 pm in reply to: PATIENTS OVER 40 #20175
    mdsingulfbreeze
    Member

    No, they just are saying it (Transplant) is risky because of unrelated donor and his age. They can not do anything about the hips deteriorating because the risk of having hips replace is risky for infections at this time until after successful Transplant. I read some simular stories and some (pateints) believe it it the ATGAM/Cyclosporin that is causing the deterioration. Doc’s have no clue.

    February 5, 2008 at 3:01 pm in reply to: PATIENTS OVER 40 #20173
    mdsingulfbreeze
    Member

    Hi Zoe,

    His platelet count is 58 thousand.

    The Dr here said his bones are starting to detiorate. I have read patient stories where they believe it is the ATGAM. Of course the Dr in Gainsville said that was impossible.

    January 23, 2008 at 12:10 am in reply to: My Dad #18420
    mdsingulfbreeze
    Member

    MY PRAYERS ARE WITH YOU AND YOUR FAMILY.

    January 18, 2008 at 4:20 pm in reply to: Going Crazy #20076
    mdsingulfbreeze
    Member

    Thanks to everyone for the suggestions. I have already started checking into a few. Glad I found this website…was not sure what to do. This whole situation has me CRAZY & DEPRESSED!!

    January 17, 2008 at 9:12 pm in reply to: Atgam #19847
    mdsingulfbreeze
    Member

    My husband had 2 treatments of ATGAM & Cyclosporin and he did good, his counts are stable (still low) but has not had transfusion in 11 mos. However he now has deteriorating bones and they are not sure if it is from the “Treatment” but I have read other stories and seems like it has happened to others.

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Viewing 9 posts - 1 through 9 (of 9 total)

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