Russ P.'s Replies | MDS Foundation

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July 26, 2007 at 1:26 pm in reply to: Dear All #18849

Russ P.
Member

Prayers for God’s Grace to comfort and sustain you.

July 26, 2007 at 1:22 pm in reply to: Need information – Please help #18777

Russ P.
Member

Neil, Your grasp of the MDS situation is amazing.
Too bad the law doesn’t permit you to practice.
Blessings,
Russ

July 10, 2007 at 12:12 am in reply to: Round 2 of Dacogen #18709

Russ P.
Member

Dacogen definitely lowers the WBCs – they gave me a shot of Neulasta which I didn’t tolerate well but some do OK with it. Perhaps pineapple could help those platelets. Best wishes,
Russ

July 9, 2007 at 7:05 pm in reply to: Extra Chromosome 8? #18267

Russ P.
Member

Pigduck,
Blessings and prayers to you and your father.
Russ

July 9, 2007 at 7:01 pm in reply to: God does answer prayer #18697

Russ P.
Member

Dear Ray,
God bless you and may He sustain you through your memories and His promise that you will see Susan again someday. She will be in a glorious body never to suffer the needle jabs and nausea from chemo. I also have been praying that my heavenly Father will call me home without suffering. Diagnosed in Jan. 07, I knew I didn’t have long but the Lord in His love and mercy has kept me feeling good for 6 months.
Praise Him for His goodness and love.
Russ

June 27, 2007 at 1:43 pm in reply to: Help! #18638

Russ P.
Member

Perhaps you meant urinary tract infection. Sorry my slow brain didn’t think of that before I asked.

June 27, 2007 at 1:42 pm in reply to: Help! #18637

Russ P.
Member

Kristi, best wishes. BTW, what is a UTI?
Hope to hear from you.
Russ

June 27, 2007 at 1:36 pm in reply to: Extra Chromosome 8? #18262

Russ P.
Member

Pigduck, did you do a search of postings for “vidaza”? A prayer goes out for your dad.
God Bless,
Russ

June 27, 2007 at 2:09 am in reply to: Dacogen First Cycle #18624

Russ P.
Member

Jack, Did you have specific HDAC in mind. I believe they hold promise used with Dacogen or Vidaza.
Russ

June 27, 2007 at 2:01 am in reply to: No Port in the cards #18614

Russ P.
Member

Terri, don’t laugh but fresh pinapple raised my PLTs. Also noticed that they were higher when on prednisone for another problem.
Best regards,
Russ

June 27, 2007 at 1:51 am in reply to: Help! #18635

Russ P.
Member

Kristi, would you please e-mail me at:
ripoole@yahoo.com I have much to share with you since I just finished my 6th round of vidaza +PXD-101 at the U. of Chicago. My case is different but want to compare treatments.
Best wishes for your dad,
Russ

June 15, 2007 at 4:36 pm in reply to: Please help- MOM VERY SICK #18559

Russ P.
Member

Linda, I don’t know anything about the Hematologists in Benton Harbor but you are not far from the Michiana Hematology/Oncolgy Clinic in South Bend. I see Dr. Tabor there and he is a fine caring doctor. Unfortunately MDS is so different from case to case. Has your mom had a BMB? You may want to consult with a specialist in MDS at one of the teaching hospitals.
Best wishes,
Russ

June 13, 2007 at 2:23 pm in reply to: Extra Chromosome 8? #18250

Russ P.
Member

Pigduck,
The 5-azacitidine (Vidaza) will lower his counts but should recover in a couple of weeks. I think there is hope in using a hypomethylating drug like vidaza or dacogen along with a HDAC inhibitor. There seems to be more trials going this way.
Best of luck,
Russ

June 13, 2007 at 2:17 pm in reply to: Dacogen w/Valproic Acid #18503

Russ P.
Member

Janice,
I presume you saw my e-mail and reply from Dr. Goldberg. He’s got to be a great doc to bother helping others without compensation. Thanks for the lead.
Russ

June 13, 2007 at 2:12 pm in reply to: My Dad #18322

Russ P.
Member

Katie
Just said a prayer for your Dad, may he continue to improve.
Russ
Author

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