[estee]

I hope this information from the “Real Age” site can help somebody.

“In a lab study, acai berry extract killed between 45 and 86 percent of a sample of human leukemia
cells. (Browse La Puma’s book online.) “

[estee]

Gail,
I am so sorry for your loss. I can feel the pain and the love in your messages.
I’m glad you have good support. You have all our good wishes as well.

[estee]

Dear Katie,
I am so sorry for your loss. I have been following your posts and am glad you found some comfort here. My thoughts are with you and your dad’s other loved ones. I am glad you were able to be with him.

[estee]

I am so sorry the medical community is giving you so little support. I can’t believe the ER doctor would not admit him.
I’m surprized they delayed scheduled Vidaza because of the holidays. I also think your regular doctor should have been willing to see him after hours or at least consult with the ER.

[estee]

My husband smoked for about 50 years although he stopped 9 years ago. He also once had a sideline business of repairing lawnmowers which may have exposed him to harmful chemicals. His doctor said it was unlikely that it was hereditary. This was a comfort to him as he has 3 sons he loved very much.
Thank you for your kind words.
I wish you and your loved ones all the best in beating or living with this disease.

[estee]

Dear Butch, I am so sorry about your wife. It looks like your step daughter’s disease was found in time. Do doctors think there is a hereditary element? I hope Ashley continues to do well.
Today would have been our 19th anniversary. I had said I’d stop blaming myself for not seeing his symptoms earlier but it’s hard.

[estee]

Why does this come up with a title like “Amateur teen babe gets 2008.”? No serious participant would read that.

[estee]

My husband who probably had MDS that progressed to AML did not seem to be in pain. He was given “weeks, not months” by his doctors. He was home for about 3 fairly good days then went to Hospice the day before he died. They treated him well there and he said he was comfortable. They did sedate him although he had not seemed to be in pain. He hardly seemed aware of anything the last several hours although he did react when his youngest son came into his room. He passed quietly about 3 hours later.

[estee]

My husband’s first BMB was 9/10/2007. He went to the hospital the following day starting chemo 9/12. We were in the hospital 3 weeks and 2 days when the 2nd BMB showed chemo had failed. We left the hospital Oct.3 and he died Oct.8 after 1 day at the hospice care center.

[estee]

Thank you all for your condolences.
It seems to have happened in such a short time. He had felt tired and weak in the spring. We thought it was age and the strain of moving. Then in June he thought he had pneumonia and was hospitalized. He thought he could just get some antibiotics and go home and was upset that they wanted to keep him in the hospital. During the stay it was noted that all his blood cell counts were low. The attending physician was concerned. A hemotologist seemed less concerned but said he would do a work up for his regular doctor. So far as I know, his regular doctor, whom he travelled 75 miles each way to see, never said anything about the pancytopenia. After the hospitalization, home health came to see him for about a month treating him for congestive heart failure. He was doing so well that he was discharged. After a few weaks he began to feel very weak and chilled. I got him an appointment with a nearby doctor. He came home saying his blood tests showed he was anemic. I wanted to know what kind of anemia he had and called the doctor’s office to find out. A few days later someone called and told me he had pancytopenia but that it was nothing new; he had had the same dx in the hospital. The new doctor made an appointment with a hemotologist who then did the bone marrow biopsy (I believe he expected MDS) He called the next day with the AML dx and we went to the hospital to start chemo the following day.
I keep going over in my mind what we should have done, when we should have realized, what could have been done differently. MDS and AML were just nothing we had ever thought of before the last hemotologist.

[estee]

I believe my husband had MDS which had changed to AML subtype M2. He was 74 years old.
He was taken to the hospice care center the day before the drip was to begin. He died there just one day later–last night.

[Author]

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