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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 1 through 15 (of 32 total)
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  • Author
    Posts
  • January 27, 2007 at 11:55 am in reply to: please pray #16943
    VIOLA
    Member

    Eve, I’m praying too and I think about Your Dad and You!!!Viola

    March 27, 2006 at 8:20 pm in reply to: My Dad is gone #12427
    VIOLA
    Member

    Jeff,

    so sorry for your lose … Viola

    March 23, 2006 at 3:50 pm in reply to: My Dad and Revlimid #12339
    VIOLA
    Member

    Dear Carl and Brenda!
    Thank You for Your email. It is very helpful to us. Tomorrow Dad will start Revlimid. We expect a problems, but I beleive that this drug will help my Dad! Best wishes to You!

    March 8, 2006 at 4:22 pm in reply to: Danazol anyone?? #12160
    VIOLA
    Member

    Hi Jim, my Dad has MDS RA with 5q and he tried Danazol for 3 or 4 month , but it did’t work for Him. Best wishes to You!

    February 21, 2006 at 9:38 am in reply to: THIS DIEASE IS TAKING MY DAD #11979
    VIOLA
    Member

    My thoughts and prayers are with you !I’m so sorry … It is so dificult … I hate this disease!!!

    February 3, 2006 at 9:54 am in reply to: New Diagnosis #11630
    VIOLA
    Member

    Hi Susan, my Dad was diagnosed with MDS 5Q in July 2003. It was terrible message for us. I’ve never forgot it!We live in Poland. It was (it is) so difficult! As Janice wrote You must to know what type of MDS Dad has ans what chromosome is affected. The treatment is depended of kind of MDS. People on this forum are wonderful. I’m sure that You find out help and many necessary informations here .Best wishes to You and Your Dad!

    January 13, 2006 at 9:27 am in reply to: question about REVLIMID-please help! #11287
    VIOLA
    Member

    Thank You!

    January 13, 2006 at 9:26 am in reply to: question about REVLIMID-please help! #11286
    VIOLA
    Member

    Suzanna, Patti! Every information can help us. Maybe Revlimid will be approved in Europe, but we don’t know when? I know from Celgene that it is planed to include the hospltals in Poland in next clinical traials, but we aslo don’t know when? I beleive that my Dady will be strong and we will find a way to get it! Thank

    January 12, 2006 at 3:39 pm in reply to: question about REVLIMID-please help! #11283
    VIOLA
    Member

    Harold, Suzanna thank You for Your posts. My Dad has MDS 5q and Revlimid is only hope for us, because another drugs didn’t work.I wish You all the best!

    January 3, 2006 at 2:58 pm in reply to: dad passed away #11094
    VIOLA
    Member

    Karan,

    I’m so so sorry!I’m thinking of You and pray for Your Dad!

    January 3, 2006 at 2:56 pm in reply to: My Daddy is gone #10816
    VIOLA
    Member

    Kathy,

    I’m so sorry! I’m thinking of You too.

    December 21, 2005 at 3:10 pm in reply to: Healthy Holiday #10845
    VIOLA
    Member

    A Merry Christmas and Happy-Healthy New Year to you !!!Only beatifull moments!

    December 20, 2005 at 2:46 pm in reply to: My Daddy is gone #10796
    VIOLA
    Member

    Kathy, I am very sorry to hear this and I will pray for You and Your Dad!!!

    December 20, 2005 at 7:40 am in reply to: can someone explain me what is the Essiac tea? #10781
    VIOLA
    Member

    Janet, Caroline , Jerry, Caren … thank You all of You! I try to find more informations and to bye Essiac Tea for my Dad. Once again, thank You!

    December 19, 2005 at 2:11 pm in reply to: dad knows what is happening. #10773
    VIOLA
    Member

    Karen, I’m thinking about You and pray for You and Your Dad!

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