[eve]

that should read i don’t think the txs are going to do that

[eve]

hi brian

what about treatments with vidaza or some of the other drugs some of the people on this forum are on – i think they should try to get his blasts down, and i don’t think the txs are not going to do that

eve

[eve]

carrie

the vidaza is injected into the muscle not the vein

eve

[eve]

ok i will give it a try too

eve

[eve]

my dad only gets a finger stick weekly – doesn’t bother any veins

eve

[eve]

i too want to thank all the knowledgeable people on this forum

they have given me a greater understanding of the different avenues this disease can take – have made me sound very intelligent to the doctors and have added moral support

thank you

eve

[eve]

hi john

my dad is being treated by dr silverman @ mt sinai – he has had 14 treatments (each treatment being the weeks cycle of shots)

we are very satisfied with dr silverman (not necessarily with the wait we always have in his office, and the difficulty sometimes reaching him when we are not in the office) – we see dr silverman once a month and have a cbc done weekly at a local hospital (which happens to be a center of excellence)and the results are faxed to mt sinai

eve

[eve]

dear john

my dad (82) has been on vidaza for 14 treatments
he has mds and myelofibrosis – the treatments have allowed him to go longer between txs -he now gets tx every 4 to 5 weeks, where before the treatments it was every 2 to 3 weeks – the doctor is now lowering the dosage to see if they can get him to go even longer between txs – the side effects are not as bad as most other chemo

is the doctor treating your dad experienced in treating mds patients – that is very important

good luck
feel free to ask any other questions you might have

eve

[eve]

thanks neil

i wonder if he was on any treatments for the mds

would be interesting to know

eve

[eve]

dear sad

i hope you make the hemo good and mad and get all the answers you need

if the doctor is going to be mad about questions he shouldn’t be treating your dad in the first place

my dad was in the hospital recently – his platelets were low, but not at the serious level, and they also gave him vit K

good luck

eve

[eve]

hi neil

i had heard he died of pneumonia & had a stem cell abnormality – I was wondering if it was mds

eve

[eve]

hi jim

sorry you had to start your new year on such a bad note

first and most important is to make sure your mother is being treated by a doctor with experience in treating mds patients – at a center of excellence – names of those centers can be found on this web site

my dad and several members of this forum have been on vidaza – success varies – as do the side effects, but usually they are much milder than other forms of chemo

one of our members – neil – will probably e-mail you a list of questions to ask

in the meantime read all you can, but don’t get too depressed by what you read, all cases of this disease are different & just because the doctor says she will probable die from this he didn’t say when – so here’s hoping that that is 30 years from now

good luck

eve

[eve]

dear lisa

my deepest sympathy on the passing of your dad
may all the loving memories you have of him live within your heart forever

eve

[Author]

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