[karenkay]

Caroline,
I wish I had any good info for you, but I surely don’t. I’m sure sorry your dad is going through so much!!
I will continue to pray for your dad and especially for you. I can relate to the need to be stoic at times, but I also know a good cry when you can let yourself does pretty good, too. I hope you are taking care of yourself and not just everyone else.
My heart truly goes out to you.
God bless,
karenk

[karenkay]

I hope your find comfort and peace. My sympathy is with you and your family. God bless you.
karenk

[karenkay]

Caroline,
Zonks! I don’t blame you one bit for being mad. If only it changed things for the better, sometimes it does, sometimes not.
I remember when my dad was in the hosp. with sepsis and had diarreah so bad that he also didn’t make it to the toilet. It stained the floor and wouldn’t go away after they cleaned it. A constant reminder there for him. Poor guy!!
Oh the frustrations of doctors and health care sometimes. My heart goes out to you. I am sure you will do everything you can do for your dad.
I wish your mom peace, as well as you. I think of you often.
As I know you often read my posts, I hope you know that I share your frustrations, although I know everyone of us has a unique experience.
I spent today at home and my husband went to spend the day with my dad and watch football and do guy stuff. Gave me a great break and I actually cooked dinner for my kids. I have been trying all day to comes to terms with my dad’s condition, and I am starting to lean more towards comfort than healing for him in my prayers as of late.
I don’t know what is going to happen, but at this point, I know there are too many things not in my hands, but God’s.
I wish all of our loved ones were healthy happy and strong. If wishes were fishes…
Best of all hope and strength to you!!
karenk

[karenkay]

Hang in there Caroline. I am so sorry to hear all of this. Your poor father must be exhausted. I am sure you have said before, but what is his age??
I hope everything works out for the very best and that the hosp. staff there takes wonderful care of him. This is the hosp. that was so unhelpful before, right? I have faith your (dad’s) new experience will be better!! It already sounds like it is.
My prayers and heart go out for you and yours.
God bless us all,
karenk

[karenkay]

I have no answers for your questions just a word of empathy for your situation. I am so sorry that you are going through this. My situation is somewhat similar this holy season and I am feeling just as lost and scared. I don’t know what I would do without the support I find on this board. I pray for all of us everyday.
I hope you get some answers to your questions.
God bless all of us,
Karenk

[karenkay]

Kathy,
God bless and comfort your dad, you, and your loved ones. I share your pain.
Prayers for all of us,
karenk

[karenkay]

thank you Neil,
Yes, I am coming to see that my dad is not going to get better. I have talked to some places about hospice care and I need to talk to his doct. about doing a consult for hospice at the VA. I just want him to be comfortable and make some peace with some people if he can. He has not had an easy life.
I did tell him yesterday that his MDS is progressing and that means we have towatch out for infection and that his body isn’t strong enough to take the chemo that would help his situation. I didn’t say leukemia, but he knew what I was talking about, that he is getting worse.
I know this because he asked to see my mom, who he has been estranged with for over 20 years and my sister who he hasn’t seen for two years. He aslso spoke to the counselor about my brother who died 14 years ago. He never tells people about my brother/his son.
I think he knows.
My only hesitation with hospice is that they won’t even give him transfusions for the RBC count I don’t think. That will just make him so weak and all.
I am so sad right now.
Thank you for the support.
God Bless,
Karenk

[karenkay]

thank you Margaret, for this opportunity. I pray you are finding comfort and support.
God bless us all,
karenk

[karenkay]

My dad has dementia right now, is depressed and doing very well. Right now, it would serve no purpose to tell him, but he is going to be told.
I know I have to let him know, he is just so confused right now, all he would remember is “leukemia” and he would give up everything.
I am trying to wait until his friend Kathy gets here and he has the support he needs.
It could be a mistake, I know that, and I am wrestling with it very much. But right now, he is feeling so good.
Thank you for your insight, I know I have a lot to do.
God bless us all,
karenk

[karenkay]

Margaret,
Well, I boo-hooed through that blog, but in the best way possible. What a true gift. How blessed to be able to spend the rest of your days knowing things were not left unsaid. I thank you for sharing such a moment of grace with us. I am so happy for Luke to spend his last day on this earth with such love and comfort!!
God bless and comfort you all.
Your friend,
karenk

[karenkay]

Jerry,
No problem, you come up with something lost and let me know, Anthony is your guy!! I love him.

Karen

thanks Caroline, he was listening!!

[karenkay]

I found the book. Some petitions to Saint Anthony and one more search through the house and there it was
karenk

[karenkay]

I am going to call dr. z office tomorrow and tell him that if he can’t contain the doom and despair until he can speak with me privately, then I can’t take my dad in there. He is doing too well right now to bring him in, dementia and all, and have the doc say, sorry guy, you’re going to die. If doc can’t give me that, then we won’t go.
To tell you all the truth, I do want him to look at my dad’s blood and give me his opinion on it. Then I will have something to compare it to when I see new doctor on 14th.
I am probably making a mistake, but I am too scared not to go on Thursday.
Please pray for us.
karenk
ps, I lost the spiral notebook that I have been taking notes in for the past three months. Please pray that I find it. It has all of my dad’s med information in it and I think some personal stuff, too. I am just sick about it. I can’t remember all the stuff in it and I am going crazy looking for it. I think I left it in the hosp. er. Ugh!!

[karenkay]

((((((Margaret)))))),
I am so sorry to hear this. I am praying for your comfort and knowing that out in this world, when you look up to the sky, there are people whom you have never personally met who share that sky with you and are your friends and mourn your loss with you. My heart goes out to you and your family.
I believe in God and his mercy. I hope you are filled with the same faith that lets you be at peace and know that Luke is more than ok, he is free.
God bless you,
Karenk

[karenkay]

Margaret,
I have been checking and checking for an update from you. I have been thinking so much of you and Luke today and praying for the best possible outcome!!
You are one brave and loving lady. I am proud of you and Luke is blessed to have you.
God bless you both.
I wish like crazy I could say something wonderful and intelligent, but I can only say that I care.
Please keep the updates coming if you can.
karenk

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