[txnmomma]

John-

You are SO right.. and what you said was right on the nose!

Men– Gotta love ’em LOL

Seriously, I think he was in denial about it all and didnt think much about the fevers. He got it taken care of- finally and found the problem!

[txnmomma]

Well.. we found out where the fever was coming from. After posting this question, I urged my dad to see his dr about it and be upfront with him.

He was hosp. and he was internally bleeding in the lungs. He is on o2 now for a few months with more medical problems.

Thank for all the advice from everyone!

[txnmomma]

Quote:

Wendy – thanks for the info. I would like to try thalidomide next.

My dad was on Thalidomide for approx 3 months and his counts were going up. His RBC’s were looking better and also the WBC’s. They were going up!! BUt sad thing was.. the side effects were too much for him. He was hospitalized over Thanksgiving [2004] for side effects. They were bad!

At the same time, many many patiens respond well to Thalidomide. Maybe this is the route to take!!

I hope it all works out for you daughter!! *hugs*

[txnmomma]

Sending you some.. “feel better” wishes! I hope you are doing ok.

If you need to vent or just post your feels. We are family. Let us know how you are doing!!

***HUGS***

[txnmomma]

I got 88%..lol

Nice way to relax and end my day!! Thank you!

[txnmomma]

Hi Paige. Just noticed your dad and my dad were dx’ed with MDS same month and same year.

What was wrong with the Vidaza and thalidomide? Side effects too much or blood counts were going up? jUst wondering. What classification of MDS is he?

[txnmomma]

I didnt know about Compazine, Neil! Thank you. I will mention it to him and get him to ask his hemo.

I remember now.. Zofran was a bit pricey! I used it when I was preg with my son.

How long can Procrit be taken? indefinitely as long as RCB’s are going up. I assume hemo’s look at RCB’s and Hgb’s?

[txnmomma]

I have heard Amifostine works pretty good. My dad’s hemo considered it. My dad is on Procrit and will be on Vidaza soon.

Being in Houston, likle Suzanne there is a COE at MD Anderson.

University of Texas
MD Anderson Cancer Center
Houston, Texas
Elihu H. Estey, MD

What is her classification of MDS? what other ways are they treating your daughter?

I know many patients are on Thalidomide, also.

Best of luck!

[txnmomma]

Butch.. I am so sorry for your losses. I cant believe 2 loved ones in one day!! I remember reading your very first post.. back in April when your wife had a BMT. You were waiting to take a honeymoon. I am SO SO SORRY!

What did your grandma die of? Where you there with wife and grandma? or different states, different hospitals?

**HUGS**

wow!! I will definitely be thinking of you in the days ahead. Stay strong!

[txnmomma]

Thank you all for the well wishes!!

It’s been a LONG LONG weekend. Turns out they did a bronchoscopy and found he was bleeding internallyl in the lungs. His lungs were filling with blood as well as the pnuemonia!!

[txnmomma]

People with MDS..

Can pneumonia be alot harder to fight given the low BC’s?

I am worried about his recovery and certainly dont want him to die.

[txnmomma]

Just wanting to post and offer support!!

I am so sorry things are going this way for you.

*HUGS*

[txnmomma]

How many units are you taking, Neil and as well, your mom Julie?

I believe my dad is on 20,000 and I wanna say he was increased to 40,000. That sticks in my mind.

My dad has pain around the injection site, which is his stomach. Just for about a day..

He gets a little nauseated with it. Nothing major and the nausea is tolerable with Reglan. I thought about mentioning to him Zofran for the nausea.

I need to see what the latest RBc’s as of last week.

TY for the input!

[txnmomma]

Quote:

I can’t afford to miss a day right now. I’ve used up all my sick and vacation days already.

that has to be hard. My dad is the same way. he is on the thin ice with his sick days. He stays home when he has too, but at times it effects his income.

He is the breadwinner and still needs to be making money to pay bills. Thats a headache, but at the same time. He cant go to work alot!

I hope your wife gets better!!!

[txnmomma]

Kate, I am very sorry for your loss!! It really brings into reality this disease.
I hope you find strength in the days ahead to go on.*hugs*

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