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July 10, 2006 at 9:46 pm in reply to: Ron's fight is over #13915

Engel
Member

Dear Phyllis,
So very sorry to hear of your loss. My husbands MDS also turned to AML in May, he had chemo ara-C and is now in remission. He is doing Vidaza now and Procrit. Our prayers are with you and your family, this horrible sickness has changed so many lifes we take each day and thank God.Ron is in a better place and we all will go there someday, he just got there first. God Love You,Gloria

July 7, 2006 at 3:48 pm in reply to: time for a break #13856

Engel
Member

Patty,
Thank you for your E-mail, still wish you would stay, but I understand and I will keep in touch for information and news of your MIL. I appreciate your opion and if others don’t thats ok this is a free country. Take care. Gloria

July 6, 2006 at 6:40 pm in reply to: time for a break #13850

Engel
Member

Patty,
When my husband was dx in Jan. 2006 you were the first one I wrote to. I appreciate your opinion more than you can know, plese reconsider about leaving this board we all need you. Not all of us are as knowledgeable on natural remedies as you are, I for one certainly am very grateful for the help and advice I got from your posts. God Bless you and your family and your MIL, she is blessed to have you. Love, Gloria

July 4, 2006 at 6:53 pm in reply to: Happy Fourth Of July Everyone #13833

Engel
Member

Sandy,
Happy Fourth to you, did Joe receive complete remission after his first heavy chemo or did he have the 2% blasts right after the first chemo. My husband went into complete remission after chemo and is now on Vidaza to stay there, any information would be helpful. Thanks, Gloria

July 4, 2006 at 6:47 pm in reply to: Insurance denies Life Saving Transplant #13836

Engel
Member

Sandy,
My husband went from MDS to AML in a short time and was also lucky to be in complete remission. He just started Vidaza yesterday and again tomorrow, off 21 days and on for 7.BMT for us was out no siplings. Also we were told since my husband is 69 SCT would be out as of now. His hemo doc. seems to think the Vidaza will keep him in remission. Any one have other fews on this. Thanks, Gloria

July 3, 2006 at 9:22 pm in reply to: Counts still dropping #13677

Engel
Member

Dennis,
My prayers are with you, I hope all goes well. I have not responded for over a month. My husband Kornel dx in Jan. 2006 with RARS, Procrit did not help he developed AML May 12, 2006. Chemo Ara-C was in the hospital for 5 weeks. Is now in full remission and doing well. Just started his consilidation rounds of Vidaza today and I know that his counts will drop.
HGB> 11.8, WBC.9.8, RBC 3.97, ANC.4.4 and Plt. 404 , during treatment his WBC down to .2 and Plt down to 10, all quickly improved. Good Luck to you all. Gloria

June 24, 2006 at 2:09 am in reply to: Vidaza effectiveness???????? #3864

Engel
Member

Fran,
Don’t give up,Jim will go into remission sometimes it just takes longer. My husband Kornel dx in Jan. 06 MDS, went to AML in early May. He had chemo and we spend 5 weeks in the hospital, infections and heart problems. Had a BMB on June 21, and today June 23 received results, total remission. We are on cloud 9 and pray he stays in remission, we will do some vidaza for save measure, he takes only a 81mg. of asprin a day thats all. This whole illness has been a living nightmare. Our prayers are with you all. Gloria

May 23, 2006 at 11:01 pm in reply to: Update on Ron #12774

Engel
Member

Dear Phyllis,
My husband was dx in Jan.06 with MDS and May 06 with AML, on Friday May 12 we went to the hospital for chemo they started on May 14, and did 6, we are now waiting for the counts to come up. He has a fever every afternoon, how is Ron doing. Keep in touch, Gloria

May 19, 2006 at 8:42 pm in reply to: MDS and remission #12941

Engel
Member

lucym,
How is your Mom doing. My husband finished his chemo last night he started on Sunday, sofar no bad sight effects, he is very optimistic and hopeful, I on the other hand worry all the time. The took a chest exray this morning and he received one unit of blood this afternoon. I spend 8 hours at the hospital and when I get home I am tired but still having problem sleeping. I know that the effects of chemo will still come, keep in touch. Gloria

May 18, 2006 at 2:24 pm in reply to: MDS and remission #12935

Engel
Member

lucym, My husband started chemo on the 14 of May he was dx with MDS in Jan. 2006 quickly turned to AML on May 12, he is in the hospital, did well the first two treatments now low plt count hgb is holding has bad sweats at night and high fever. Any information will be greatly appreciated.
Gloria

husband AML as of 05/014/06 on chemo right now.

May 15, 2006 at 8:24 pm in reply to: Need to talk to someone #12990

Engel
Member

Dear Sarah,
Thank you for your advice and I am so sorry that Charlie passed on, he is with God and in a better place. My husband was very depressed today and cried, he has had two chemos and today was to have a transfusion, but doc said he was holding his own and would do chemo again tomorrow. I go to hospital in the morning and stay until about 4.00 he wants me to drive home before the heavy traffic. Thank you so much for posting. God Bless you. Gloria

May 15, 2006 at 11:27 am in reply to: Need to talk to someone #12988

Engel
Member

Dennis, My husband had his first two Chemos this weekend, he is holding up fine. He will be in the hospital for about 4 to 5 weeks they say, I have not spoken with a Social Worker as yet and although the doctors and nurses are very nice, I am looking for a support group. Everyone on this board has been so great and I pray for you all and have found such a bond here. I was always so protected by my husband and now I feel so lost. Gloria
husband AML as of May 12, 06 and having Chemo.

May 13, 2006 at 3:33 am in reply to: Need to talk to someone #12985

Engel
Member

Dear Ellie,
Thanks for your reply I will seek out a Social Worker tomorrow at the hospital. They want to start Chemo right away since that will be my husbands best chance, he is very brave and we do have a strong faith, but it is so hard. I have tried to do some research at the AML site without any luck. This forum here is my life saver everyone is so great, I love you all and pray that all will turn out for everyone.
Gloria

husband 69, just dx with AML after only 4 months of MDS RARS Procrit did not work, Tx. every 4 weeks.

May 13, 2006 at 1:26 am in reply to: Need to talk to someone #12981

Engel
Member

Dennis, I call you my shing light, since you always have such good advice. Our luck is running out, today our BMB showed that my husband Kornel has AML and they put him in the hospital, low RBC and PLAT they want to start aggressive chemo in a day or two. I am so scared do you know of anyone who could help and discuss this with me. Thanks.Gloria

May 13, 2006 at 1:18 am in reply to: MDS and remission #12930

Engel
Member

Suzanne, I read your post where you are no in remission. My husband was dx in 01/06 with RARS and today 5/12/06 after another BMB he is AML and we are completly lost and I would appriciate anything you can tell me. He is in the hospital low RBC and Plat, getting both this evening and tomorrow they want to get him ready for Chemo this has all happened so fast and I feel so lost.thank for any advice at all. Gloria
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