[Engel]

Dennis,
You have been my shining light, when I read your posts, I get hope. We have had a really rough time.My husband 69 was dx in Jan.06 with RARS, he had a BMB yesterday and he has had a fever all day and is hurting , is this common? We think that his disease has progressed some since nothing has helped. One step forward and two back.
Thank you for being on this forum. Gloria

[Engel]

Thank you so much for this very informative information. Can a 69 year old without siplings have a SCT , since we have been told my husband would not be a candidate for BMT. I am collecting all the information I can get since we are having a very difficult time. Thank you. Gloria

husband 69 dx 01/06 Procrit not working transfusion every 4 weeks.

[Engel]

What is the difference between a SCT and BMT, I quess this question must sound stupid but I really don’t know. Thanks. Gloria

[Engel]

Hi, My husband had his second BMB and it hurt a lot he also has fever not too high. We will get the results in a week. Of last he was RARS, but I think it has advanced further, he was originally dx in jan. 2006 he has had 3tx. this year and he is on procrit, with no results. Help anyone. Gloria

[Engel]

Dear Ken,
Hope your wife feels better. My husband had been dex with RARS in 01/06 is having an BTB today, we live in Ft. Myers and since you are in SW Florida can you recommend anyone, also does your wife use any natural products.
Gloria

husband 69 has RARS, on Procrit weekly no result, very low PLT, transfusions every 4 weeks or so.

[Engel]

Cathy,
My husband dx 01/06 with RARS, he is on weekly Procrit no results. Tx every 5 weeks. Since he does not have 5q doctors will not give him Revlimid, where did you go and where did you get.
Gloria

husband dx 01/06 RARS. weekly Procrit, tx, every 5 weeks

[Engel]

Patti,
You are the most caring person I have read about-it is good to vent. My husband was dx on Jan.2006 and is on procrit and tx every 4 weeks. My Dad is 91 and healthy but lonley and my MIL is 86 and a constent complainer, my husband is her only child and she says daily, he did not get this from me, both these older people make my husband feel real bad since they are healthy and he is not. I try to be supportive and I check out everything, but I know that this illness will not go away and will only get worse. The procrit does not seem to help does anyone have another selution. Need all the help I can get.

Husband(69) RARS 1/06 Procrut abd Tx every 4 weeks

[Engel]

Eric.
My husband is 69 and was dx with RARS inJan. 06.Heis on Procrit once a week. He has had 3Tx and they seem to hold 5 weeks. His doctor said he is not a candidate for Revlimid, but I question this. In fact I seem to do the research on this disease with this wonderful forum. So few people seem to know what this is all about. Help. Gloria

[Engel]

Hi Bete Boop,
Hope he revlimid helps. my husband was dx in Jan. 06 and I am looking for all the information I can get. We live in Ft. Myers, and I am looking for a naturapath and have not had any luck. I was told to contact a Dr. List at Moffett,but sofar this has all been over whelming need help and advice.
Gloria
Husband diag.01/06 RARS, on procrit once a week transfusions every 5 weeks. 3 sofar

[Engel]

Frank.
My husaband was dx with RARS on 01/06, no reponse to Procrit and transfusion 2 units every 5 weeks. I am interested in any natural vitamins or herbs but I do not know where to start. We live in Ft. Myers, Fl. and wonder if any one on this board could help me. Gloria

Engel(69) diag.RARS 01/06. no response to Procrit
Transfusions 2 units/5 weeks,

[Engel]

Hi Judy,
Thanks for the information, we had another transfusion today his count was way down again. The doctor Dr. Raymond seems to be very knowledgeable about MDS, I will try to get an appointment with Dr. List I have heard of him. My husband is having a hard time accepting this and wants to believe it will somehow go away.
Thanks, Gloria

[Engel]

Dear Judy,
Was very touched by reading your story, my husband has just been diagnosed with MDS and I have found very little help in Ft. Myers, Florida he has had two transfusions, they seem to last about 6 weeks and he receives Procrit which sofar has not helped at all. Any information would be helpful. Gloria

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