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choijk
MemberR.,
I am sorry to hear about your sister’s passing. It is never easy to lose a loved one. My thoughts are with you and your family.MemberChuck,
I believe someone on the forum has had good results with predisone (sp?). However, steroids have their side effects too. I hope you continue to have great results!MemberNeil,
Hang in there. You are a fighter. We will be thinking about you and pulling for you.MemberMbrio,
Welcome to the forum. My father is currently on Vidaza. This is is second course (just started last month in March) and he is doing great with no side effects. The only side effect (if you can call it that) is that he has these really ugly looking bruises at the injection sites. He receives Vidaza via IV. If you would like, you can read more about his experience under the topic that says “Starting Vidaza on 02/04/08.”In response to you requestion, my father receives Vidaza and he is anemic. Although his platelets and wbc’s have not been affected, my father is anemic. His hgb is usually between 6.5 – 8.5, with the median hgb usually somewhere around 7.0.
MemberMN,
That is wonderful news about your husband. I hope that Revlimid continues to work for your husband!MemberI don’t know Marvin, but if there is, I would also like to know.
MemberRose,
I am so sorry to read your post. It seems that it happened so fast. My thoughts and prayers are with you and your family.MemberZeke,
I just read your post. I am very sorry for your loss. PLease accept my deepest condolences. My thoughts and prayers are with you.MemberDick,
Dr. Ron Paquette is WONDERFUL! I took my father to UCLA for a second opinion and even though it cost roughly around $500 (we have HMO), it was every dollar well spent. Dr. Paquette confirmed my dad’s diagnosis and made sure we felt comfortable with whatever answers he gave us. We probably sat with him for approximately 45 minutes to an hour. Later while we were leaving the clinic, we saw Dr. Paquette running to another building. Needless to say, we held up his time, but not once did he show any impatience.
I also Dr. Paquette at the MDS convention that was held in Las Vegas last summer. He exemplified such an efficient memory as he actually recognized me!
When we saw Dr. Paquette, he gave my father 3 treatment options: 1) Procrit; 2) Vidaza; 3) Vidaza + Procrit. We held off Vidaza for a year, and finally caved in this month and began the Vidaza. My father completed his first round (03/03/08-03/07/08) and has not experienced ANY side effects. The only side effect, if you can call it a side effect, is bruising around the needle insertion area.
When I asked our Kaiser hematologist regarding Vidaza vs. Dacogen, he said both did the same thing; that the only difference is that Dacogen is administered in a hospital for 3 days (?). He said that he recommended Vidaza because he would be adminstered at the hospital and my dad would be able to go home afterwards.
I will keep you updated with the Vidaza progress. So far, from his CBC on Friday 03/07/08, his platelets took a dive to 88. Usually, he maintains a platelet level from 111-130. His wbc’s are still strong at 4.2. His hgb is a 7.9. But his hgb was expected as he receives rbc’s every 2 weeks. We have a doctor’s appt tomorrow and he should be receiving 1-2 units of rbc’s tomorrow.
Has your doctor mentioned Vidaza? I wonder why some doctors choose Dacogen over Vidaza, and vice versa. Any thoughts?
MemberIt might be MPD. Myeloproliferative
MemberHi,
Just wanted to give an update on my dad and Vidaza. Instead of starting Vidaza on Feb 4th, it got pushed back to Monday, March 3rd.My dad started his first round of Vidaza this week on Monday and will be finsihing on Friday. So far, no side effects at all! He looks great, he’s in great spirits. According to him, he is keeping a close eye on his own body to see if there is anything that is different. So far, he feels none.
For the patients that had side effects from Vidaza, when did these occur? I’m praying for great results.
MemberBill, I have been following billys posts. What a miracle! Happy b day Billy! To many more to come!
Happy early b day to u too Jim!
MemberCOMPLICATIONS OF BLOOD TRANSFUSIONS
“The symptoms of most of the reactions that occur during or soon after
transfusion are similar. These include the development of a fever, chills,
nausea, pain at the site of the transfusion (arm vein) or in the back,
shortness of breath, a drop in blood pressure, passing dark or red urine, or a
skin rash. Any patient noticing any change in his or her condition during a
transfusion, however slight it may seem, should alert the nursing staff
promptly. Serious complications can be prevented by early recognition of a
reaction, stopping the transfusion and limiting the amount of blood given.”http://www.leukemia-lymphoma.org/attachments/National/br_1144786293.pdf
I found this on page 20
MemberMary,
I think you are right. 9 units of rbc’s is a lot at one time. I can be completely wrong and probably am, but for some reason, I do recall reading somewhere that that too many blood transfusions at one time is harmful because it causes a person’s body to go to shock. (?) Again, I’m probably wrong…. I’ll try to find something on the Internet. If successful, I will post on this thread.MemberZeke,
My father too is transfusion dependent. This means that he receives rbc every two weeks and receives 1 to 2 units each time.Although my father has not told me of urine in his blood he did have blood in his stool while on revlimid which is another type of chemotherapy. From what the nurses at the infusion center has told me, if there is blood in the urine, u must bring it up to the doctor.
My father too will be beginning vidaza in March through IV. He was scheduled to start on feb but the chemo did not arrive.
I wish u and ur father all the best. Please keep us updated here. I’ve learned a lot on this forum and there are many knowledgeable people that will help u along the way sort out the information.
I will share my fathers expriences once he begins.
God bless to all
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