MDS is a bone marrow failure disorder
MDS is a blood cancer
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Viewing 8 posts - 61 through 68 (of 68 total)
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  • in reply to: Dad's Vidaza is on hold until his counts go up #4167
    DonUK
    Member

    Hi Carrie, it is very easy to get worked up over some of these things. The slightest irregularity can have (well certainly me) trawling the internet and reading medical things which I don’t fully understand (and drawing my own conclusions).
    As the wise one (Neil) says, everyone is different and reacts differntly to treatment. Hang in there, try to keep your dad eating well and I’m sure the counts will come……

    You are in my prayers

    in reply to: Today #4015
    DonUK
    Member

    I’ll second everyone’s comments. Whilst I cannot imagine what having MDS is like, I do know that feeling helpless towards your loved ones is very difficult. However, whilst I don’t condone things like that, put it down to the person that PM’d you was having a bad day. We all have ’em, and sometimes we do things we don’t really mean.

    in reply to: Looks like it is a go for BMT #4037
    DonUK
    Member

    I wish you the very best of luck Bill. There are concerns, but hey, the positives sure outweigh them !

    in reply to: Update on me #3954
    DonUK
    Member

    Brilliant Suzanne – long may the health continue!

    in reply to: Any had platelet transfusion reaction? #3884
    DonUK
    Member

    Hi Dave – Karen always has reaction to platelets (not as bad symptoms as you – she starts coughing and itching). They give her cortisone and piriton (ant-allergies I believe) every time before the platelets. Red’s have always been fine.

    in reply to: Conditioning regime Vs post BMT #3506
    DonUK
    Member

    Guys – many thanks for your responses.
    Karen finished her chemo on Saturday and I think all things said and done isn’t doing too badly. Sore mouth,upset stomach, loss of appetite and lethargy seem to be the main symptoms at the moment. She did contract a fever overnight last night but the IV antibiotics seemed to have sorted that out.
    She’s super-brave, I just hope she can keep it up.

    Bill and Mary – thanks for the link – most informative.

    Best wishes and prayers for all.
    Don

    in reply to: My BMT #3387
    DonUK
    Member

    Hey Marsha – that is fantastic news. Sounds like it wasn’t a walk in the park but it’s the cure that counts. Well done and great to hear you’re back.
    Take your time and focus on getting well.

    in reply to: Any news on Marsha ? #2480
    DonUK
    Member

    Many thanks Cheryl. Sincerely hoping that Marsha has got through it OK.

    My fiance goes in for the first round of her Chemo next week with her BMT on March 1st.

Viewing 8 posts - 61 through 68 (of 68 total)

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