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Jack_dup1Member
I am so sorry for the loss to your family, it sounds like you were all better for having each other in your lives.
JackJack_dup1MemberPlease add my name to the list.
Thank you,
Jack Saffell
West Des Moines, IowaJack_dup1MemberDawn,
I agree that the Doctor should have been notified, sometime as patients we just get sick of Doctors. My wife is always saying I should tell the Doc. about this problem or that problem. They blame every thing on the MDS. I had mentioned to by family Doctor that I hated going to the oncologist because they see everything as an cancer problem, she said “when you are a hammer, the whole world looks like a nail”. I have ringing in my ears, it’s the MDS, I have numb feet, it’s the MDS, I get lite headed, it’s the MDS, it goes on and on. As care givers you worry about these things, as patients we just get tired of hearing it, so sometimes we stick out head in the sand. That doesn’t mean we don’t worry about it, but sometimes we need a break from worrying about it. I hope this make sense.
Just keep caring.
JackJack_dup1MemberGreat News Cathy, thanks for sharing. Where did Troy get his Transplant?
JackJack_dup1MemberKate,
I am very sadden by the news about George. I know that there is little than can be said at a time like this. Please know that we are thinking of you and feel some of the pain you are going through.
JackJack_dup1MemberHi Barbra,
Thanks for keeping in touch. You and Ron were warriors in this horrible battle and never gave up. Ron was fortunate to have you and your family at his side. We all get angry about this from time to time, you are certainly justified. Just cherish the years you had together and keep it in prospective.
JackJack_dup1MemberJody,
That is great news, the odds were not great in regards to CMML and Gleevac. I like to think the odds are always 50/50, either it works or it doesn’t. I’m thrilled for you both.
JackJack_dup1MemberSuzanne,
Thanks for sharing the wonderful news,it brought a smile to my face.It shows everyone that we just have to keep fighting.
JackJack_dup1MemberKate,
I’m sorry to hear about George’s decreased counts, lets hope it’s temporary and they start to climb a little, it happens. Thinking about you both and praying for the best.
JackJack_dup1MemberJody,
This is the WEB site for the Noni capsules. I think they are working, the only way to know for sure is to stop taking them and thats not going to happen.
JackJack_dup1MemberTerri,
I really believe that the Noni Capsules have helped my platelets, I have been taking them for about about one year and my platelet have gone from 70k to over 100k for the last 9 months, last month they were 137k, this month back to 101. Some are skeptical but I’m going to keep taking them.
JackJack_dup1MemberI’m so sorry to hear of Bob’s passing. Strange how we can feel so close to people we have never met. I was at MD Anderson yesterday, just looking at all the leukemia patients and wondering, have I talked to any of them on the web site? Bob P will be missed.
JackJack_dup1MemberI was diagnosed with CMML 4/03. My WBC and Platelets were iniially low, RBC normal. My platelets are +100,000. WBC 26.6, Mono’s 4200. I will be at MD Anderson 3 days next week for evaluation, Will let you know how it goes. Wish me luck, this is always the nervous time.
JackJack_dup1MemberYours Truly,
buttercup applebreathJack_dup1MemberGreeting Andrzej,
A week can be very long indeed, when you are waiting on something so important to you. I pray you will get promising news. Where would your Father have to travel to get treatment, if it can’t be done in Poland? Please know that we are thinking of you and your family.
Jack R. -
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