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JerryMember
Caroline …
Debbie’s and my thoughts and prayers are with you. We pray for the best.
Jerry
JerryMemberJon,
My thoughts and prayers go out to you and Nadine.
Jerry
JerryMemberJody,
Yes, last night after I returned from 8 days in Las Vegas. I thought it was my inactivity. Now, it seems fine.
Jerry
JerryMemberSandy,
What is your recipe for the juicing? Thank you.
Jerry
JerryMemberFran,
It could mean anything. They might have messed up a test …. forgotten to do one …. gotten results, either high or low that don’t seem to make sense to them. They might want to confirm a negative result before revealing it to you OR they might want to confirm a positive result before confirming it to you. My father gave me some very good advice for this exact situation. If you have something to worry about, there are 2 things you can do. 1)do something about it so you don’t have to worry any more or 2)you cannot do anything about it now, so there is no point in worrying about it now. So, as hard as it seems to be, try to relax and not worry until you see the doctor and get the results. Our thoughts are with you and Jim.
Jerry
JerryMemberJerryMemberJim,
Not I yet … which is a real shame for all of you who have to read my jibberish. Have a great weekend.
Jerry
JerryMemberCaroline,
Good golly!! You would think that they could find a knee that is the right size. If that was not so serious to your Dad, it would be funny. Maybe find a third doctor?? I sure wish you a lot of luck and I did not mean to alarm you about dialysis, but I have been told high creatinine means kidney failure. Maybe it can mean something else too. I hope so for your case. Anyway, my thoughts are with you.
Jerry
JerryMemberCaroline,
I don’t mind questions at all. They are not really doing anything for my creatinine level beyond monitoring it every time I get my blood checked. My nephrologist (who is one of the best human beings I have ever met) says that I probably have 2 years or so before I have to consider dialysis. I have looked into the various methods of dialysis, but until we know what my health status is at that time, it is a waste of good energy to worry about it too much now. As far as the Aranesp goes, I asked the same question. The Dr’s opinion is that it would be even more effective for me. That obviously worries me a bit, but I am a gambler and if they think it is better to try it, I will. But, the final decision has yet to be made. I don’t know if you have followed my posts here, but I am travelling a lot in the next 3 months and I just don’t let this disease get me down yet. But, I know that I am blessed. I kiddingly tell people that if the Dr’s had not told me I was sick, I would not know it. (Not really true … when my hemoglobin got down to 7, I knew I had a problem). BTW, Debbie’s Dad (age 76)just had knee replacement surgery and cannot wait to have his other one done. My thoughts will be with you.
Jerry
JerryMemberCaroline,
Good luck to you. I will be thinking of you both. I also have kidney disease which complicates my life too. I hope thay can do your Dad’s kidney stones before they cause him real problems. My creatinine is currently at 3.4 which is high but not yet dangerously so. My hemoglobin is now up to 12.7 which is the highest is has been in 2 or 3 years. As a result, I feel terriffic. I wish Procrit would work so well for everyone. Best wishes.
Jerry
JerryMemberFran,
All my doctors freely give me copies of my blood work. You actually “own” the results and they cannot keep it from you and I would be very surprised if they tried. Just ask them for a copy. Good luck.
Jerry
JerryMemberCaroline,
Sorry, I forgot this. You mention that he gets his shots on Thursdays. I take 60,000 units but I get it in shots of 20,000 every Mon, Wed and Fri. If he is getting a bigger shot once a week, I wonder if it would help to spread it out. Just a thought.
Jerry
JerryMemberCaroline,
I have taken Procrit for over a year and I do not know if there is a significant difference between Procrrit and Eprex. But I have not suffered from the side effects you mention at all. Debbie gives me my shot, it stings a little and that’s the end of it. I went to the Eprex website and read their patient information form and it mentions joint pain as a possible side effect. I would certainly mention this to your doctor as soon as possible. I don’t know how old your Dad is, but I am 61 and in otherwise good condition. I just cannot believe that he should be having so much trouble. Good luck to you.
Jerry
JerryMemberJody,
Thanks a lot for a great idea. With the exchange rate I could get more bang for my buck. :p
Jerry
JerryMemberMargaret,
My thoughts are with you and Luke this afternoon. I am so glad that you have good news. You made me feel so good that I was thinking that some day we ought to have an all “good news” day. We all have things to be happy about and things to thank God for. Now I will hope that Luke does not get an incurable desire to constantly swim due to the fish oil. I hope the news continues to be positive.
Jerry
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