[fotis]

i really thank you for your reply, it was really encouraging and helped me the last couple of days.

i am hoping for just a virus, although since yesterday she developed skin rashes… we are in despair.

tomorrow will get the blood results. i hope for the best.

[fotis]

Hi

My mother is living with this for 6-7 years now. I start to believe that some people are founding about MDS really early just by luck, before it has really evolved. For example my mother found out after she was sick with really low white count, but afterwards all these years everything is above minimal levels. And she has multi line dysplasia.

If i remember correctly, search for posts by "Neil". He had MDS for 17 years, and lived pretty much normally, very helpful with everyone on this forum. And the irony, he died from something unrelated to MDS at around 70 years old.

[fotis]

My mother diagnosed with very low whites nearly 2 years ago(May 2006, 2.3) and she is doing fine. She has MSD-RCMD and all 3 lines are above min range. No medication till now, just supportive care and visits to the doctor every 3 months. We are more then happy with the results.

[fotis]

Neil

i was kind of panicked, reading the first post, but after reading it all, i am glad you are doing better. Hope to get well soon!

[fotis]

Alex,

i am at a similar position as you were some months ago. The thought of the future and the things that may happen is devastating.

Difficult times are ahead of you now, but i am sure the memories that your mother gave you will give you the strength to go on, and will keep her in your heart and thoughts for ever.

My thoughts are with you.

[fotis]

I wish i had words to soften your pain. I will hope for the best. You always had been here for us.

[fotis]

Hope you feel better and overcome the sickness as soon as possible!

[fotis]

Her doctor was (or looked) really happy with the result, there is no signs of a possibly infection at the moment. They didnt try to mesure it manually, just did the exams two times with different samples of blood.

She said just to wait 1 month for another exam (and not the usual 2 months).

And a great THANKS to you Neil, you are one that helped me the most. I hope you are doing fine, and i wish the best for you.

[fotis]

Thank you all for your answers ! It was great help (the money are A LOT indeed)!

But today we went for a check up with the doctor after 2 months of the previous one. WBC had gone up to 6.8 from 2.3. Doctor asked us to redo the CBC test, and after 4 hours WBC was up to 8.0!!??

Doctor said that all other blood values were ok, and if this was a bad increase it would show on the rest of the results. So doctor was really optimistic.

Has anyone experienced anything similar? Can the increase be good for real, or it just means we are going towards RAEB?

thank you all again.

[fotis]

From the depths of my heart, i thank you all for the answers. Very encouraging indeed, you really made my day more happier.

Truly Thank you, Fotis

[fotis]

correct adress : http://www.mednet.gr/eae/haema/pdf/7-sup-03.pdf

[fotis]

Thank you all for your answers, its really supportive.

Mom has MDS-RCMD (refactory cytopenia with multilineage dysplasia). I was reading for hours on the web and i pretty much understand most of the terms and have a better view of the situation now.

I wish the best for everyone. I will check the forum as often as i can.

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