geebeebee's Replies | MDS Foundation

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January 13, 2005 at 12:43 pm in reply to: Secondary MDS #3181

geebeebee
Member

Kathy, my Mom had treatments for breast cancer five years before her MDS diagnosis.

Greg

January 13, 2005 at 12:41 pm in reply to: Cathy (CMH64) #3079

geebeebee
Member

Cheryl, thanks for passing that along! It’s great to hear that Marsha’s doing OK.

Greg

January 12, 2005 at 6:59 am in reply to: Cathy (CMH64) #3075

geebeebee
Member

That’s awesome, Cathy — glad to hear from you and great to hear that Troy is doing well, and I’m hoping for continued success.

Mom is doing pretty well. She’s still pretty weak and tired, but getting up and around as much as possible. Her appetite is pretty poor — it drives my Dad crazy that she doesn’t eat any better than she does. It doesn’t seem to be that unusual, but we want to keep her energy up so that she can exercise more. Today, they did a ctscan to see if her lungs had any issues, and they didn’t find anything major, but we’ll hear more tomorrow — they just want to make sure that nothing is causing the weakness.

Keep up the good work, and keep in touch when you can.

Take care,

Greg

January 12, 2005 at 6:53 am in reply to: some good news….yeah! #3107

geebeebee
Member

Great news, Jody. I hope it keeps coming…

Greg

January 11, 2005 at 4:32 am in reply to: George is in the hospital again #2938

geebeebee
Member

Hi Kate,

Thinking of you and George — sure hoping things are better.

Take care,

Greg

January 11, 2005 at 4:29 am in reply to: Neil, how's your mom? #3015

geebeebee
Member

Sorry to hear about your mother, Neil. Best of wishes.

Greg

January 11, 2005 at 4:27 am in reply to: The waiting game has started #3036

geebeebee
Member

I’m very sorry to hear that, April. We’ll all be thinking of you.

Greg

January 9, 2005 at 8:59 am in reply to: Grandparents #2964

geebeebee
Member

Congratulations, you two! I know that will be of great enjoyment.

Greg

January 8, 2005 at 6:21 pm in reply to: George is in the hospital again #2921

geebeebee
Member

Kate, wishing for the best for you and George. Hang in there,

Greg

January 6, 2005 at 5:07 pm in reply to: Dad started his Vidaza today #2610

geebeebee
Member

Carrie and Kathy,

Best of wishes and luck with the Vidaza for your Dads.

Greg

January 6, 2005 at 5:01 pm in reply to: transferred to AML #2790

geebeebee
Member

Pam, I’m sorry to hear about that — keep your spirits up — I’m hoping a match will come around soon for you. You’re still young — that will be of great benefit to you as you battle this.

We’ll all be thinking of you.

Take care,

Greg

January 1, 2005 at 12:58 am in reply to: My dad passed away #2528

geebeebee
Member

Lisa, I’m so sorry to hear that. You’re in our thoughts.

Take care of yourself,

Greg

December 31, 2004 at 6:01 am in reply to: Mom could go either way… #2493

geebeebee
Member

Margaret, hopefully it’s the good news your doctor is speaking of. It seems that the Vidaza seems to bottom things out. We’ll all be thinking of you and rooting for things to work out.

Greg

December 31, 2004 at 5:58 am in reply to: Happy Christmas news #2465

geebeebee
Member

Congratulations Carrie! Best wishes to your Dad as well.

Greg

December 31, 2004 at 5:52 am in reply to: Dad a "rainy day", searching NBMR for donor #2505

geebeebee
Member

Hi Pam,

I can appreciate the change of news — this is a tough decision, and it’s good to hash it out as much as possible. I guess the good thing is if they can’t find a perfect match on the list, then your Dad is still suitable.

I don’t know a lot about the Vidaza, but several folks here have experience with it. I thought they liked to wait on the Vidaza if you were having a SCT, but I could be wrong.

Your platelets are low, but I don’t think they usually do transfusions until they hit 10,000, so you have a little bit of breathing room there, especially if they are holding for you.

Do you have long-term disability coverage through your work? It probably wouldn’t hurt to start looking into the coverage. Usually, they seem to cover a percentage of your current wage — I think mine is 70% — but it should run indefinitely until you are able to work again. Just to be ready, I’d call your HR/Benefits rep and see what your plan’s specifics are.

Best of luck with the donor search, and keep us posted.

Take care,

Greg
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