Naomi's Replies | MDS Foundation

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Viewing 15 posts - 76 through 90 (of 115 total)

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March 12, 2005 at 5:54 am in reply to: I have AML #4729

Naomi
Member

Good Luck Jen. Hope all goes well for you and will keep you in my prayers
Naomi

March 10, 2005 at 8:33 pm in reply to: Any suggestions? #4658

Naomi
Member

Barbra:
Hope your visit to the dr is benificial today.
It is so sad that they can’t give Ron soomething to help him be comfortable.
Prayers are with you both.
Please keep us posted on Ron’s condition.
Naomi

March 9, 2005 at 5:22 am in reply to: Doctors Visit #4542

Naomi
Member

Things sound good for Bob. Let’s hope they keep up.
Prayers for both of you
Naomi

March 7, 2005 at 8:41 pm in reply to: funny name game #4504

Naomi
Member

Hi Jody and all:
I am Goober Applechunks. I think I will keep my regular name.
Thanks for the laugh.
Naomi

March 3, 2005 at 10:15 pm in reply to: To Neil #4425

Naomi
Member

Neil:
Sorry to hear about your mother.
Prayers are with you and your family at this time of sorrow.
Thanks for your concern and help to all of us on the forum.
Naomi

March 3, 2005 at 10:12 pm in reply to: George is home #4407

Naomi
Member

Kate:
I am glad that George is home. It always seems better to get home around familiar things.
Try to keep a positive attitude and enjoy each day as it comes to you.
You are both in my prayers.
Naomi

March 3, 2005 at 10:06 pm in reply to: Update on dad #4370

Naomi
Member

Carrie:
Good News is always great to hear. Hope it keeps up for your dad. I am sure it is a relief to you.
Naomi

March 2, 2005 at 9:38 pm in reply to: Update on Mom #4374

Naomi
Member

Greg: Glad to hear the new cells are taking over. Hopefully her feelings will start to get better shortly.
Naomi

March 2, 2005 at 9:33 pm in reply to: A special request #4351

Naomi
Member

Ron your note to all of us is very appreciated. The comment about Neil is so appropiate. He is such a wealth of information. I know that many of us can relate our experiences as they have happened to us, but Neil can give so much more and he does it freely. Barbra has done a great amount of research and also passes it on to us.

My prayers are with you as well as everyone else on the forum both the caregivers and the patients.

Take care and enjoy your time with the kids and all.

Naomi

February 21, 2005 at 7:56 pm in reply to: Who is the mysterious Mr. Donner; + quackwatch #4132

Naomi
Member

I, also, am enjoying the running commentary between you two. It has given me some well needed chuckles.
Hope you can keep it up.
Please NO Hillary.
Naomi

February 12, 2005 at 11:22 pm in reply to: abnormal chromosome after transplant? #4091

Naomi
Member

Doreen: If you graft the donors marrow or stem cells, they become yours and you should not have a chromosome abnormality. That way you have a cure.
I had a remission with meds. The 5q- was gone and it has now come back. I am no longer in remission.
The only cure is the transplant.
Hope this helps.
Naomi

February 8, 2005 at 5:44 pm in reply to: Ron #3990

Naomi
Member

Barbra and Ron:
I am so sorry that things have not worked for you. I have no info on the drug, but prayers and thoughts are with you.
Naomi

February 8, 2005 at 5:36 pm in reply to: A poem I wrote for my dad #3974

Naomi
Member

Thanks for sharing Lisa. It is a beautiful poem and made me think of my father as I read it.
Naomi

February 6, 2005 at 10:26 pm in reply to: Revimid and MDS #3775

Naomi
Member

Hi John:
There are a few side effects. Some of them sort of came with the MDS for me. I have diahrrea, but is controlled with imodium. I do have some neuropathy in my hands, but still have all the feeling. They just tingle all the time. I also have tinnitus, which I have always had, but it is more noticeable. Some of the things are results of aging, but I can blame them on the MDS or the drugs. Makes me feel a little bit better, as I do not consider myself old.

:rolleyes:
I take a 5 mg capsule daily. Started out with 10mg, but was too much for me and reacted to it.
Naomi

February 6, 2005 at 10:15 pm in reply to: Update on me #3952

Naomi
Member

Wonderful news Suzanne. Hopefully this will keep you MDS free and you can go on and live your life. Of course with the cbcs it is worth giving a little blood in order to get good reports.
Take care
Naomi
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