Forum Replies Created
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Jane,
you never can really prepare yourself for such a roller coaster ride such as this illness, your constantly on guard and walking on pins and needles, and as far as I believe …from personal experience is, you can TRY to prepare for ones illness and or passing, but you can NEVER prepare for their absence ! I don’t mean to sound blunt here, but it’s a big part of the picture.
Please keep us posted on your brother hun, we’re all praying for him…
Jane,
welcome aboard, I’m sorry you have the need to find us but at the same time, I’m glad you did because there are alot of folks here that have alot of knowledge, sounds as if your brother has had a very rough time, and I will pray for him as well as your whole family… God BlessSarah…
Hi, I would be curious too as to why they can’t get a aspiration to show blast count, I don’t want to jump the gun here, lord know’s I’m not a specialist or anything, but from what we were told, once the blasts reach the peripheral blood then that usualy means that the blasts are high.
hopefully you guy’s are told different than we were… a second opinion sounds like a good idea.
your Charlie was dx. in 01 and this is 05 so you’ve come along way babyI might be to late because you’ve allready sent out your letter, but in the future if you send out anything else reguarding these illness’s, please add these names as well
Sandra Miranda
Lucerne, ca. 95458
Dawn Miranda
Lucerne, ca. 95458
Larry Bass
Santa rosa, ca. 95403
Linda Alridge
Eureka, ca. 95503Carrie…
Keep hanging in there, my prayers are with you and your family, I’ve been following your post’s and… your a terrific daughterCarrie,
Hello Carrie and mom…
I think it’s great you both are here on the forum and I would like to add my prayers for your dad/husband… hang in thereI don’t know what happened but I replied to everyone, then it disapeared, so I’ll start over…haha
Kathy1…
Thank you, your exactly right, 9 months sounds like forever and just like yesterday all at the same time. lil Joe is still asking where his daddy is ! and …when looking at pictures he’ll perk right up and say…mom, that’s MY daddy…haha I don’t know why I disapeared from the directory, I tried re-registering and even the forum people tried getting me back in, but it just wasn’t working…then all of a sudden it did then poof !!! here I’am … I am so happy about it too, if anything …to share my experiences with someone and to also add my prayers for everybody… Ellie…
thank you , your garden is a great idea, I planted a fruit tree with Joey in rememberance of Joe, the tree signifies strength, the fruit signifies a rebirth of sorts and the shade it will provide when it matures signifies his daddys love surrounding him and comforting him, he might even be able to climb it one day to pick the fruit and feel like he’s sitting in his dads lap with the branches being his arms firmly around him. that was what I wrote in a poem fashion along with a picture of the tree for his baby book… Marsha…
Hi hun, I’m doing o.k. I remember talking with you not to long after your ordeal, I’m so happy your doing so wonderfully, I have found it difficult to stop the “fight” in a sence, I was on automatic fighting for Joe’s life in what seemed to be such a whirlwind of having to absorb info. research it and apply it…it’s actually taken me this long just to slow my brain down a lil bit Joe will always live on forever in our home and hearts Joeys room is almost like a shrine, and Joe’s portrait hangs up so it is always looking and watching down over our lil Joe while he’s sleeping and playing. Donna…
Hi, yes it sure is strange starting a new life, I don’t think I’ve started a new one as of yet, I’m just continuing on a day to day basis and raising Joey to be the proud lil man like if Joe was still here with us…like you, I’m still experiencing all thoes “firsts” and it’s very hard (sighing here too ) your right about our loved ones wanting us to go on, Joe and I had many, many discussions about this exact thing as soon as he was dx. all we can do is take one day at a time and honor our loved ones by talking about them, sharing about them, and continuing the fight to find a cure for this horrible disease !Katheryn…
this group of folks are a great family…everyone here is open, honest, caring, people who have a common link…I’m sooo sorry for your loss, and although the relationship was different, it’s still a huge loss ! How have you been doing so far ? lil Joe is a chip off the ol block, but I know as he get’s older the questions and answers will get harder … I was able to have the strength emotionally to go buy a camcorder when Joe was dx. and got them together on tape, many times, so Joey will have something to look at…among other things… thanks for introducing yourself, Naomi…
Hi…it’s great to hear from you you’ve had a struggle in and out of remissions, haven’t you…you keep fighting, theres newer meds now, and I strongly believe that one drug or a combination of drugs will come to the forefront and put a end to all the blood diseases…you’ve had access to more of them already than my Joe did. Kate…
My dear Kate, I have grieved for you , you put up such a brilliant battle to help your husband… are you doing alright ? yes, my lil Joe helps to ease the pain , but…it also increases the pain in a sence, it’s going to be a long road, andI know this…but if we keep putting one foot in front of the other we’ll eventually get there…so take my hand and we’ll walk it together if you want too !Terri,
I’ve been following you everyday, so sorry I was “lost” for so long, but I’m back on now
You have really done a wonderful job in educating yourselves and applying what you had learned, kudoes kiddo !!! your Bob is a sucsess story !!! continued prayers and good luck always
