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sarah
MemberJeff, what a blessing your sister is a perfect match. I pray God is with you and your family thru it all. One day at a time.
MemberSo good to hear your husband is doing well. He is blessed.
MemberSuzanne, you are truly blessed. Continued good health to you and have a great time on your trip.
MemberSandy, keeping you both in my thoughts.
MemberDear Phyllis,
Thoughts and prayers are with you and your family. If and when you need to talk I am an email away. Its one day at a time.MemberThis forum has been part of my daily routine since my husband was dx’d Dec of 2001. Its been such a comfort and support system for me. Since my husband passed Jan 9 of 2006, I find myself continuing to check posts, not daily as before, but often. We have all come here because of this disease.The stress takes such a toll on each of us. The support I and others have recieved have been a godsend. I pray it will continue to benefit each of us as it is intended.
MemberHope all goes well for you Dennis. What a blessing to have an option of transplant. We searched over 4 1/2 years never find a bone marrow donor.My husband had an hard to find combination of antigens.
Thats why when we found a double cordblood match
(not perfect match) we thought it was an answer to prayer. Wishing you the very best.MemberAmen Terri, one thing I’ve learned is don’t sweat the little stuff. Everything is little compared to fighting for your life, or the life of a loved one.
MemberBest wishes for your sister. She is blessed. Hope it continues good for her.
MemberOn Nov 14, 2005 my husband Charlie and I checked into the hospital for what was to be a 30 day stay for induction chemo, before going to University of Minn. for double cordblood transplant. Well needless to say that 30 days turned into 59, the day he passed. It took his blasts away, but all counts went down to nothing, white blood never came back it remained at .01. Had 30 lbs of fluid build up, congestive heart failure, elevated liver and kidney functions. They gave him lots of lasix, tylenol and ibruprophen.Lots of antibotics. Had fevers for 32 of those days. That last week Dr came in and told him he had days to live, had renal failure. Only the grace of God got us both through those next 5 days. Almost 6 months has past, and I rethink everything over and over again that he went through. Its heartbreaking. Somedays I get so angry. My heart is broken. I pray for strength for each of you and your loved one. MDS is a horrible,cruel disease.
MemberCherish each day, it is in fact a gift from God.My husband Charlie was my best friend.
I pray for strength for each of us.MemberCongratulations Billy.
MemberEngel, best advice I can give you is to be there with him through it all. He needs you. Cherish each moment with him.
God Bless,
SarahMemberI know exactly how each of you feel. My husband Charlie was the most optimistic person I have ever known. We, like each of you lived each day one day at a time. Just trying to capture each and every moment in spite of all the tests, cbc’s, Dr’s , ups and downs. If it was not for our faith,we will would not have gotten through it. I continue to take each day at a time, and try to count my many blessings. Enjoy each day, it is in fact a gift from God. Each of you are close in my thoughts daily. I pray for continued strength for each of us.
SarahMemberI too check the posts daily, this forum has been such an important source of strength for me since my husband, Charlie was dx’d Dec 2001. I do not post now very often, the loss is so very hard. I continue to take things one day at a time and just praying through this. Some days better than others. Keeping everyone in my thoughts and prayers. I pray for strength for us all.
Hugs to all,
Sarah -
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