[Kathryn]

Doreen, I am thinking about you and sending you my best wishes.

Kathryn

[Kathryn]

Hey Carrie,

I understand your thoughts & fears. I have a feeling the ones I have are quite similar…. The thought of losing my dad makes my heart ache horribly. I just have to keep the faith and make the most of the time we have. I remain realistically optimistic! You know miracles happen and the “IFs” can drive you crazy… You just have to take it one day at a time.

That is so good that you will be able to spend some time w/ your dad. It will probably make you both feel a lot better!

Carrie, if you ever need to chat or vent, I am only a click away. You all are in my prayers.

Take care, big ((HUG)),

Kathryn

[Kathryn]

Hey everyone! Well, I am cautiously optimistic, but my dad’s white count has gone down some more from 66,000 to 33,000. His platelets also are down to 9,000, but the doc. wanted to wait on the tx.. He is going back tomorrow for another check. I know I should feel good about the white count going down, but for some reason it worries me. I still have so many questions, especially since the doc. said that he had moved into the acute phase and his platelet count is continuously so low. What exactly does that mean for my dad? They dont’ seem to want to know, but I certainly do! After his visit tomorrow, I may need to call the doctor’s nurse confidentially…… His last shot of Vidaza was on Monday, so only time will tell.

Suzanne-gardening & photography! How wonderful! Two of my favorite acivities!! Good for the soul!

Thank you all for your thoughts & prayers; mine of with you & yours as well.

Kathryn

[Kathryn]

Wendy, I hope that your father is doing better and the doctors were able to get him on the road to recovery.

You and your father are in my prayers. Keep the faith.

Take care,

Kathryn

[Kathryn]

Butch, my deepest sympathies are with you as well. You and your family are in my prayers.

May your love and your memories bring you both strength & peace.

Take care,

Kathryn

[Kathryn]

Thanks for the info. Suzanne. He is going to the doc. tomorrow and I will pass it along to them.

I hope that you are doing well and are having a nice Sunday eve..

Kat.

[Kathryn]

Oh Butch, I am so very sorry. You all are in my thoughts & prayers.

Kathryn

[Kathryn]

Hey Suzanne & Terri,

thanks so much for your replies. You guys are always so good.

His platelet count “bottoms out” at 10,000. If it continues to be a problem will they continue to do the transfusions as needed? I know at a certain point the body won’t make them and becomes dependent…..

Well, last night my questions were answered and my suspicions confirmed. My dad has progressed to the acute phase. The doc. told my step. a few days ago and she just told my sis. last night. My heart is so very heavy right now…. The doc. told her also that if the Vidaza doesn’t work he will have to go into the hosp. for chemo… but that he probably wouldn’t survive it. I wonder how much time he will have otherwise…. I just can’t imagine him not being around anymore……

Thank you so much for your support though this.

Kathryn

[Kathryn]

Hey Kate, I have been thinking about you so much. I can only imagine what you are feeling and my heart aches for you. Expressing your feelings is part of the healing process and we are here for you.

Take care.

w/ hugs & best wishes,

Kathryn

[Kathryn]

Hey Butch,

Wow, that is such a wonderful thing that Casey did and that the station responded! Gives you faith in humanity! I personally know how hard it can be on a daughter to have mother (she had MS) that is so ill. Her being able to be proactive definitely helps…

I hope that you are doing better. I am sorry for all of the physical stress that you are going through. These kinds of situations tend to affect you inside & out. Be strong, have faith & take good care of yourself! Don’t loose sight of that honeymoon!

You and your family are in my prayers.

Kathryn

[Kathryn]

Best wishes to you Bill! I hope that everything goes smoothly!

Kathryn

[Kathryn]

Well, it helps to read! For some reason I had never clicked on the links on the side of the home page and when I did, I found all the answers to my questions!

If you have anything to add, please do.

Thanks,

Kathryn

[Kathryn]

Kate, I am so sorry. I am thinking of you and praying for peace to you and your family. Keep your memories close, they remind us of all of our blessings…big & small.

w/love,

Kathryn

[Kathryn]

Wow Lola, though I didn’t understand half of what you said , I am impressed!!! Keeping one’s sense of humor is SO important! I too liked the alphabet soup analogy! Quite creative!

w/hugs & prayers,

Kathryn

[Kathryn]

Hey, you know, this is very frustrating, so I am going to vent.

We (my sister & I) are unable to be directly involved w/ my father’s care. My stepmother feels that we think that they are/she is uncapable of handling this when we try. I would imagine that it would be different if she were my mother(she passed away when I was 16). We aren’t even able to speak w/ the doctors unless, for some rare instance, we are at the appointment. I am thinking that they went to the internist because of money. My sister saw my father yesterday and even though he had a tx. on Friday he was so weak he couldn’t go down the stairs for fear he wouldn’t be able to get back up and his coloring was off. I was wondering if they even mentioned the fact that he fell and the possiblity of him bleeding internally. He couldn’t get back up and had to crawl to get to something he could pull himself up on. He has had insomnia also and instead of doing what the nurse suggested (the prescription or benedryl), they were going to buy an off brand of some kind of nightime tylenol. My stepmother asked the eye doctor about whether or not some nutritional pills were ok for him to take instead of asking his hemo.. Also the doctor was going to start the second round of Vidaza today, which would be a week early. She wasn’t even going to question it… thankfully, my father feels the other way. He is in no hurry to start it until he feels better. He is the only one at that office to be on Vidaza, so a bit of me feels like he is a guinea pig. He goes to the hemotologist today for a check up, so we will see.
I suppose what I will have to do, if this continues, is call the nurse on the sly. She is not supposed to talk to me, but I can talk to her!I really am concerned that money and convenience is going to interfere w/ my father’s care. I will see what plays out today…. I am hoping that I am wrong….

Also, to let you know how off things are at this time, my stepmother is determined to sell their house. My dad has lived there for 37 years and did, at one time, want to sell it. But now that he is so sick, he told my sister that it would devastate him. It is very stressful. He does not want to move right now. It was exhausting for him to just go through some books that he had collected. Lateley my step. has kicked it into high gear since the contract is up at the end of May. I am hoping God will see my father’s suffering and let him stay in his home. Once he gets through his treatments and is feeling better, then they can relist it…

Well, sorry for the vent & thanks for listening… I don’t know what I would do w/out you guys.

Best wishes and hugs to you all,

Kathryn

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