Carrie's Replies | MDS Foundation

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 15 posts - 151 through 165 (of 230 total)

← 1 2 3 … 10 11 12 … 14 15 16 →

Author

Posts
March 8, 2005 at 8:43 pm in reply to: Dad's transformed to AML #4549

Carrie
Member

I’m sorry to hear about your dad’s transformation. I hope that they can do something for him.

Carrie

March 7, 2005 at 3:14 pm in reply to: funny name game #4503

Carrie
Member

Should I change my signature?

Love always,
loopy chickenshorts

soon to be loopy chickenshorts applesprinkles

March 4, 2005 at 2:34 pm in reply to: To Neil #4428

Carrie
Member

Neil,

I’m sorry to hear about your mom’s passing. I hope it was comfortable and peaceful.

March 2, 2005 at 7:31 pm in reply to: A special request #4349

Carrie
Member

Neil is really awesome! I gave him the highest number of stars!

February 18, 2005 at 2:23 pm in reply to: Trying to Cope #4204

Carrie
Member

Barb,

I’m thinking about you. Take care,
Carrie

February 16, 2005 at 7:25 pm in reply to: Dad's Vidaza is on hold until his counts go up #4165

Carrie
Member

Terri,

Mom just recemtly told me that he takes supplements although I can’t remember which ones. I’ll check and see if there’s more that he can do.

Thanks,
Carrie

February 15, 2005 at 4:27 pm in reply to: Vidaza Users started this year #3835

Carrie
Member

Dad’s counts are okay lately. Very slowly climbing. He didn’t need platelets on Sunday.

He has his appointment with his oncologist today. They haven’t scheduled an appointment for his next Vidaza yet.

But, except for that infection and week long hospital stay, he’s doing okay.

Carrie

February 9, 2005 at 2:29 pm in reply to: Looks like it is a go for BMT #4030

Carrie
Member

Good luck! I’ll be thinking of you.

Carrie

February 9, 2005 at 2:28 pm in reply to: About my dad's blood counts from yesterday #3892

Carrie
Member

Quick update:

Dad’s last two counts (Thursday and Sunday) showed some improvement. His lymphocytes are down a little and the good ones are coming up a little.

He’s getting his counts taken every couple of days. He meets with the onc next Tuesday and he’s already scheduled for the next Vidaza. I assume that they’re thinking that his counts will come up enough for the Vidaza.

Thank you for the support,
Carrie

February 9, 2005 at 2:15 pm in reply to: Today #4008

Carrie
Member

Barbra,

I’m so sorry that someone made you feel like you couldn’t post here. If that were the case, they should tell me to go away too and I’ll say :rolleyes: . We ALL need each other here (patients and caregivers).

I’m so glad that you’re not giving up!! There has to be a cure somewhere and everyone who tries something new gives us a chance to find that cure.

Love,
Carrie

February 8, 2005 at 2:18 pm in reply to: Ron #3986

Carrie
Member

I’m sorry to hear the news. I hope that they find something effective to treat him with.

Love,
Carrie

February 7, 2005 at 2:26 pm in reply to: About my dad's blood counts from yesterday #3891

Carrie
Member

Neil,

Thank you! I’ll pass the information on to my mom.

All,

He went for his blood counts yesterday (Sunday) and his WBC went up about .1. His red blood count went down a little. His platelets are back down to 20 so he got an infusion.

Mom didn’t say anything about the lymphocytes yesterday so either they weren’t on the report or they were back to normal.

Overall, he’s feeling good. He goes in for counts again on Tuesday. Mom said they’re just waiting for the counts to come back up now so that they can start back on the Vidaza.

Love,
Carrie

February 4, 2005 at 4:59 pm in reply to: About my dad's blood counts from yesterday #3888

Carrie
Member

Thanks.

Here’s more info:

Yesterday his white blood count was at .5 and he had 100% Lymphocytes. What does this mean?

Love,
Carrie

February 3, 2005 at 5:33 pm in reply to: Dad's better and finally going home! #3819

Carrie
Member

Thanks for the replies! I talked to dad last night and he was a little out of breath just walking to get the phone But he’s feeling okay, I guess.

He had a clinic appointment this morning so I’ll probably hear back about his counts today. Let’s hope they’re going up!

Carrie

February 2, 2005 at 2:21 pm in reply to: Vidaza Users started this year #3829

Carrie
Member

My dad also started in January. As you know, he ended up with a fever for over a week but he’s better. He’ll be starting back on the Vidaza (we think) but at a smaller dose. I’ll know more later.

His counts are still pretty low so they’re keeping an eye on him. He went home last night and he’ll be back to the hospital on Thursday to get his counts checked. Not sure when they’ll do the Vidaza again.

Carrie
Author

Posts