[Sandy L]

Hi Patti

I have not been on lately and when I came on today and saw the great news I was overjoyed. I hope Mom continues to well. Think about you and all my other forum friends often. Can’t wait till tax time is over and I can read the posts regularly. Mike is doing well and they are trying to stretch the Vidaza treatments to 6 weeks. Again – So happy with the great news.

Sandy

[Sandy L]

Esme

Thanks for posting so quickly and letting us know that you are okay, and that there are loved ones there to care for you.

Sandy

[Sandy L]

Serena,

Sorry but I can’t help. I do not know anything about 13q or FISH test.

I am sure somoene else on this forum will respond if they have any knowledge.

[Sandy L]

Esme,

Oh no… I am so sorry for your loss. Please take care of yourself and I hope there is somethere that can take care of you for a while till you regain your strength. You were always there for Hans… and his love will keep you strong.

Love
Sandy

[Sandy L]

Hi Esme,

Of course you are tired……I do hope that things get better soon and that Hans is back to feeling great.

Thinking about you!

[Sandy L]

So sorry to hear about your Dad. I hope you made it there in time. My prayers are with you

Sandy

[Sandy L]

Hi Terri

So glad to see that there is improvement. I was very concerned when you did not return my phone call. I am less concerned now that I see you are posting.

keep up the good work.

[Sandy L]

Fresh.

You can ask at the produce department to core it and they will at no charge.

I do not use the sesame seeds. I bought them by Mike did not like it. Thankfully the pinaplle alone works for him.

[Sandy L]

Good luck Dee

I will keep you in my prayers.

[Sandy L]

Terri,

Do not get discouraged. It is still holding and he is not tx dependant. Try Beets. Look at previous posts from Patti – It hink it is 1 small beet 1 cucumber and tsp of olive oil. I have even made it with an apple instead of the beets so that he can tolerate it. It works!!!
Why do the whites go up and down?

I recently took Cold – eeze cough drops for my cold and it was wonderful. I gave them to Mike first and he got better very quickly. It is an over the counter drug ( cough drop)

Mike is on his 4th round of Vidaza. He started Monday. So far so goo. He has some mild nausea and is tired but still able to go to work. The doctor is thinking that he will try to stretch the intervals. The problem is they do not know what works. Our doctor has a call into Dr List from Tampa to see what he suggests. ( They feel he knows more than the average MDS doctor) Let’s see what he has to say. In the mean time we have not pursued the transplant option at this time since the odds are terrible and Mike is feeling better on Vidaza. The real question is for how long? Please post regularly so that

[Sandy L]

Ellie

I just read your post. Oh no!
Be strong – you will get thru this, my prayers are with you.

Sandy

[Sandy L]

Hi Ellie

I just read your post. My prayers are with you. Do not get discouraged.

Sandy

[Sandy L]

Hi Terri

I too have not been on regularly. What does the doctor say is the next step for Bob? Is he suggesting the Revlimid? If there is anythithat I can do please do not hesitate to call. I am up late working…..but I would always make time for you.

best regards

Sandy

[Sandy L]

Try that pinapple! What do you have to lose? I am sure it has helped Mike. He is now taking the Noni pills so I do not juice as much. Lazy….that’s why.

[Sandy L]

Sarah,

I am so sorry to hear about Charlie. My deepest sympathy to you and your family.
Sandy

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