[Sandy L]

Hi Parri

I have not been on in so long and today I log on and see your post. My deepest sympathy goes to you and your family. You have always been my inspiration/ Take solance knowing that your MIL is finally at rest and that she knew how lucky she was to have you.

Love always

Sandy

[Sandy L]

Hello Gail,

So sorry for your loss. My thoughts and prayers are with you.

[Sandy L]

Hi Patti,

I signed on tonight and found your post. I do not know what to say. I am so emotional I can not see to type. Hold on to the thought that you were a devoted DIL and the “best” caregiver anyone could ever hope for. Stay strong…. there are many people that still need your love and emotional support.

One of your admirers

[Sandy L]

Hi Sandy

It sounds like a good plan. Keep fighting… you can do it.

Sandy

[Sandy L]

Hi Sandy B.

Mike had a good response to Vidaza as well. He took Zofran ODT before the shot and then Marinol after the shot – which made him sleep for 2 hours. Then he got up and went to work.
The site area where the injection is given gets very red. He would ice the area for 15 minutes after the shot and that did help. They need to constanting mix the serum in the tube or it will be to thick to go in the skin. Towards the end. they used a longer needle which they said worked better and the site area was not as red. He used both arms, sometimes the stomach, and sometimes the thighs.

What was the ARA-C Maintenance? Did he ever have induction chemotherapy or were his blasts not that high?

I will be praying that your Mike gets a positive response from this drug. It gave My Mike a good quality of life for over a year.

[Sandy L]

Hi Beachbum,

Mike was on Noni capsules. It kept him strong against infections. When RBC were low we concentrated on juicing. Beets and cucumbers. Look at some of the past posts and get the exact recipe. I can not remember right now.
For Platelets – Juice Pineapple and black sesame seeds. Ask Patti …. she will know exactly… and I can’t think right now.

Good Luck … You are doing great

[Sandy L]

Merry Xmas and a Happy Chahukah to all. Let the happiness of the season engulf you and help to a new life ahead. Enjoy each day – we can’t control the outcome, so why not make precious memories.

[Sandy L]

Wonderful news. Enjoy this holiday season.

[Sandy L]

Wonderful news. Stay positive and pray often.

[Sandy L]

Hi Katie,

I would like those phone numbers if you do not mind. You can e-mail it to me at sandylutzker@yahoo.com. Thanks.

I will continue to pray for your Dad. He has a lot of good things going for him. Be stong for him. How is his mental attitude? I was wondering if they believe in Hypnotism for a Positive Outcome. Has anyone heard anything about that?

I will be looking for your posts. Did you buy him Lance Armstrong’s book. It might be good to refer to it from time to time.

[Sandy L]

Hi all,

Katie Bear please share more details. I went to the SK site and did not find that doctor’s name. What can we expect? I will be praying for your Dad to make a speedy recovery. Who is the donor? A family member? What type of MDS did he have and any chromosome abnormalties?

I will be posting again tonight in a new heading.

[Sandy L]

Carrie

So nice to hear from you. Enjoy your holiday and I wish everyone else on this forum and Happy and Health Holiday Season.

[Sandy L]

Hi Zoe,

No question is foolish. I do not know the answer but I hope someone else on the forum can help more.

Sandy

[Sandy L]

Thank you everyone for your prayers and good wishes. I ahve heard from several members that do not post but they e-mailed me seperately and it it has helped me so much. I am so glad that I have this forum and I am continually amazed by the goodness of so many people.

Sandy B – I would love to talk to you further … you seem to have much knowledge. I would have loved it if you were in my area and that the names of the doctors were people that we could see.

We checked in on Thurs about 4 PM. They woke him at 4 am to say that he need 2 pints of blood. HMG 7 – The gave him the blood very slowly and it finished at 9:30 AM . The doctor came in to say that they were going to send the “team” to insert a pic line in his arm since she had doubts that what they had in now would last. We waited and waited. Then they said that they were too back logged so that they might do it Sta or Monday. In the meantime they would start the chem at 3:30.
At 3 o’clock the gave him some anti-nausea iv drugs and tow marinols orally and then at 3:30 they started the drip. He has been sleeping a lot (but not in a deep sleep) and is very tired. They are giving him Idarubicun and Ara-C.
He is in a private room – but not isolation. When they come in they do not wear a mask but they do wash their hands. I do not find them to be very attentive but ….?

What’s Mary’s Magic? Please share.

We will take one day at a time but I am so anxious waiting for the ball to drop. Maybe I should be taking something too.

How come your Mike did not go for transplant? They are telling us that Mike has no other options. What is the Ara-C Maintenance? Every day? I wonder why the drug names are different. Dr Escalon told us that this was to standard drug therapy. Should I be concerned that the name is no the same?

My new e-mail is sandylutzker@yahoo.com . I welcome all responses.

My other e-mail odes not work in the hospital.

will write more soon

love

sandy
I can not get my e-mails

[Sandy L]

Sarah

So sorry for your loss. My prayers are with you .

Sandy

[Author]

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