[Sandy L]

Vey sorry for your loss. Hope you find some comfort in knowing we are here for you.

[Sandy L]

That is wonderful to hear. He has so much to look forward to. It is bad enough to read about all the adults going thru this disease but children should be spared. Give him kisses and hugs from me.

[Sandy L]

Hi Carrie
So nice to hear from you at this time. Stay strong and I am so glad that you are getting quality time and I hope it continues.

[Sandy L]

Wishing you a speedy recovery and a long life. Hope you continue to do well.

[Sandy L]

Please share your vitamin and nutritional alternatives with us. Can you also explain what SCT is? I agree with you that the BMT may not be the only way to go.

[Sandy L]

Please share your nutritional and alternative Approach. Were you ever transfusion dependant?
When your hemogloblin goes does what can you do to raise the levels?

Thanks for your help

[Sandy L]

Jane,

So sorry to hear about your brother. May you wonderful memories sustain you.

[Sandy L]

Carrie,
So sorry to hear the news. Thinking about you. Hope that helps.

[Sandy L]

Hi Wanda,

Can you give me the name of the hemo on Univ Drive? Thanks

I want to thank everyone for their advice. I will try again. I have not foumd a center of excellence associated with Vista.

[Sandy L]

Hi Carrie,

Happy Birthday wishes to your Dad.

[Sandy L]

Thank you all for the good advise. I will start investigating on Monday.

I have another question. We were told that Mike should be HLA typed? What does that entail? After he is typed then his sister should take the RX to the Red Cross and she should get typed as well as our children.

Would I be a candidate as well?

What does the donor have to go thru and does my insurance company pay for the donor’s medical bills?

Mike is also a veteran. Does anyone have experience with getting health care thru them?
We did ask the insurance company and they stated that if he joined a clinical trial they would not pay any bills. Suzanne if you can remember where please let me know.

Thank you to everyone that responded. This Forum has made me courageous. (To ask the hard questions and learn that there is always hope).

[Sandy L]

Terri,

So glad that Bob is back on the drug that is helping him. What do you do to help keep his spirits up? Bring the grandchildren over!

Thank you for the doctor recommendation. I only pray that we are lucky enough to get a doctor as nice and as knowledgeable as your hematologist.

I hope to talk to you over the week-end.

Sandy

[Sandy L]

Hi Terri

Glad that he is back on Procrit. When something works why give it up. I have been trying to get to the phone to call you but ……………….

Hopefully I will feel like talking soon. Right now I am so tired of talking. Do you know how I feel?

[Sandy L]

What is the doctor’s objection in returning to work? Does he feel that you putting yourself at risk of catching something from the work environment?

Hope you get some answers soon. You sound very frustrated. I will keep you in my prayers.

[Sandy L]

Don,

So sorry to hear about Karen. I hope you have better days soon. Will remember you in my praywers.

[Author]

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