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Marsha
MemberI may have to use neuprogen, the gangcyclovir IV that I am administering now only once a day Mon-Fri, has lowered my WBC significantly, they are watching closely. But my Dr mentioned maybe having to stop the gangcyclovir and using neuprogen and then going back on it. Guess I’ll have the PICC line for awhile. Probably will have BMB sometime this month and I want to know how things are progressing anyway.
MemberJimBob,
Hope you get some good results. Let us all know we are thinking about you
MemberSad,
As with everyone else I am sorry to hear about your father’s passing, he will always be with you. My prayers of peace are for the rest of your family.MemberBill,
I knew you would be happy with Hutch. wow 3,000 on initial search I had only 17, but it only takes one and I got it. Hopefully, things will go smoothly and not too many rough edges but trust me it only lasts for a little while. I have even forgotten some of what I went thru in the hospital. Best of luck and prayers are with you
MemberTara,
That is a wonderful positive attitude you have there. Keep up the good work. I am +68 days post transplant and am walking everyday and riding a stationary bike if I don’t feel like going to the mall or walking outside. Best of luck to you
MemberI agree with Terri, that was the only way that I got a difinitive answer for my disease. Otherwise my doctors were purely going on speculation. Got my answers and went on from there. I wish you well with your Dad, but it sounds like he has some other serious stuff going on as well. My prayers will be with all of you
MemberDave,
I had my BMT on Nov 19th, got out of hospital Dec 23 but had to go back Dec 27 due to problems with my stomach which they thought was GVHD but ended up to be the CMV virus. But am at day +69 and doing well. Good luck to you I pray things will go well for you.
MemberCarrie,
I’m glad they found the source now maybe they can get him well enough to come home. I pray so. I haven’t heard of that infection before but I’m sure that precautions are well worth it. The things we used to beable to fight off and not give any thought too are now our enemies when you are immune suppressed. My thoughts are with you
MemberGreg
My thoughts and prayers are with you and your family as you go thru this process. My hope is that your mom comes out the other side and gets better each day
Marsha(52) DX: March 04 CMML, Bone Marrow Transplant Nov 19/04 +67 days treated at UW Hospital and Clinics, Madison, WI
MemberAlexa,
Any chance you could get referred to another cancer center, maybe one that has dealt with very young people with life threatening diseases. I will say many prayers for you continued good health and for your friend’s son who really needs to have God at his side right now.
MemberKate,
I prayed to the angel of miracles for George to get a room and HE DID! Now will pray that they will beable to help him. Hang in there Kate you have lots of friends and support.
MemberI am +65 days post transplant. I was pretty sick and had rough times after chemo which was about 1 wk after BMT. That lasted for awhile, but they gave me meds to help. I agree with Jim the muscle tone is the worse, I am still working on that, going upstairs hurts sometimes. I can only ride stationary bike about 5=10 min. but working on that. I am hoping for better weather so I can get some fresh air by walking outside instead of the mall. I know it doesn’t last forever but hang in there.
Membersarah,
My prayers are with you and your family at this time of grief in your lives.
MemberKel,
Just because he says he wants to quit doesn’t really mean he does, tho it is his choice. Talk to his doctor, maybe there is something he can give him to help with the side effects. My prayers are with you and your family.
MemberDave,
Just to let you know I have had the BMT 11/19/04. My donor did not match at the C-antigen either. As of yet I have not had problems with GVHD. More so the CMV virus. Which doesn’t cause any problems unless you are immune suppressed. So have to take IV gangcyclovir but doing it at home. BMT was not a walk in the park and it took me awhile to bounce back after being discharged and then readmitted. But right now my new bone marrow is working great and a year from now I will have forgotten the worse parts and will be thinking of what a great gift I recieved.
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