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May 17, 2006 at 4:14 pm in reply to: True Doctor Stories #13048

Marsha
Member

Laughter is the best medicine; after all we are all human. Thanks Jack

Marsha

April 24, 2006 at 2:41 am in reply to: CMML #12735

Marsha
Member

Jocelyn,

I was dx’d with CMML in 3/04, I searched for info and what I found was very little and not very encouraging. At that time they had put CMML in with MDS as one of the severest forms, but has since become a disease of its own. You may find more info in the Myleproliverative disease (Sp). What I know is that it is considered a preleukemia or “smoldering” leukemia there is no cure except a BMT/SCT, chemo doesn’t really help, tho at this time they are working on some meds that keep it at bay. It is not as severe as acute myleocytic leukemia, but more severe than chronic myleocytic leukemia. They gave me about 24 months, it will eventually go into acute leukemia. I had a MUD BMT in 11/04, and am doing well, I am making my own cells and other than having some difficulties from after effects I am back to work, and really feeling pretty good. I am sorry that you had to come here, if you need more info, that I can help with don’t hesitate.

March 31, 2006 at 8:07 am in reply to: Today is my transplant birthday #12508

Marsha
Member

Jim

Congratulations on the 2 years. I don’t think that I will ever be like I was 3,4,5 years ago. In some ways I’m better and someways I’m not. But I am alive and so truly grateful for each day that I wake up. Please continue on your path of health. And enjoy your life as it is. Marsha

March 24, 2006 at 2:54 pm in reply to: TX #12382

Marsha
Member

Teri,
Extra prayers for Bob, that Tues brings great news. Congratulations on twin grandchildren, it is a blessing to look forward too.

March 4, 2006 at 12:19 am in reply to: immunizations after transplant #12127

Marsha
Member

Jimbob,

I was told that after I am off most of my medications, my transplant Dr will be doing titers to see if my donor gave me any immunity to the childhood ones. He mentioned Hepatitis, Tetanus, MMR, and I think meningitis. But not all sure about that. I know he said not to do the flu because of immunesuppressents. Oh I think Polio was one too. Maybe your regular doctor could at least due some titers to see if you have immunity. I would be afraid that a simple case of any of these diseases I had as a child would be harmful to me. Not sure what other transplant patients have done.

Marsha

February 24, 2006 at 2:53 pm in reply to: Hans is gone #12058

Marsha
Member

Esme,
I have read your postings all about Hans and your struggle. May God grant you the peace and strength to carry on. Marsha

January 7, 2006 at 5:23 pm in reply to: Update #11178

Marsha
Member

Terri,
You and Bob have been an inspiration to many of us. My prayers that Bob can get thru this downward spiral and get back up there where he belongs. Take some time for yourself too, my dear, you have been his rock as well as help to us all. God Bless you both.

Marsha

December 13, 2005 at 3:23 pm in reply to: Joe lost his fight with CMML #10650

Marsha
Member

Barbara

So very sorry to hear that Joe lost the fight. My thoughts and prayers are with you thru this very difficult time.

Marsha

December 6, 2005 at 5:03 pm in reply to: Luke is Gone #10520

Marsha
Member

Margaret,

I’m so sorry that Luke lost his fight. He is at peace now; I pray that God sends you the strength and peace that you need during the next phase of your journey.
God Bless, Marsha

December 4, 2005 at 6:07 pm in reply to: An Update #10468

Marsha
Member

Margaret,

After reading your post; it is with a heavy heart that I tell you that my prayers are with you to find the strength to handle the things that are coming your way. And for Luke to be able to come home to rest. But I too, think that as long as there is breath in his body he will fight; and with you by his side he will be able to win. My prayers continue as you continue on this journey.
God Bless,
Marsha

December 1, 2005 at 10:18 pm in reply to: Luke is in Crisis #10428

Marsha
Member

Margaret,

I too am sending my prayers to you and Luke. I hope they find out what is happening and can do something to relieve his pain.
God Bless, Marsha

November 19, 2005 at 5:13 pm in reply to: My daddy passed away #10150

Marsha
Member

Robin,

So very sorry to read about the loss of your father, try to remember the good things you shared and I pray to God that he gives you the peace and strength you deserve. God Bless, Marsha

November 19, 2005 at 2:39 am in reply to: Please Pray #10114

Marsha
Member

Caroline,
Special prayers being said tonight for you and your dad and family. God Bless, Marsha

November 17, 2005 at 10:26 pm in reply to: Turn for the worse #10058

Marsha
Member

My prayers are added also for Jon and Nadine, may God hold you both in the palm of his hand.

God Bless, Marsha

November 17, 2005 at 2:31 am in reply to: Happy Birthday Marsha #10027

Marsha
Member

Thank you to everyone, I couldn’t have made it this far without the support from the people on this forum. Now I am struggling on what to say to the one person who gave me a gift that is worth more than anything. This is a hard one for me. Thank you just doesn’t seem like enough. I wish all of you good days ahead, and be strong in this fight.
God Bless, Marsha
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