MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 61 through 75 (of 115 total)
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  • in reply to: Let's find a Cure… #4945
    KATHY1
    Member

    Lu, So sorry about your dad. You’re in my thoughts and prayers.

    Kathy

    in reply to: To Neil #4430
    KATHY1
    Member

    Neil,
    So sorry to hear about your mom. Malignancy of the bone marrow? Is that a tumor? You and your family will be in my thoughts and prayers.

    Kathy

    in reply to: A special request #4361
    KATHY1
    Member

    Thank you to Ron and Barbara for reminding us how important it is for us to show our appreciation for those who take so much of their time to help others as Neil has. Neil you are an inspiration. Thanks to all on the forum for sharing your experiences and making us feel not alone. You are all greatly appreciated.

    Kathy

    in reply to: Billy's Donor #4494
    KATHY1
    Member

    Bill, I’m so happy for your family. I just checked out Billy’s page. It’s grat to see him hav a normal life. Wishing you all the best.

    Kathy

    in reply to: Bob P #4449
    KATHY1
    Member

    So sorry to hear about Bob. My thoughts and prayers are with him and his family.

    Kathy

    in reply to: Hi All…. #4392
    KATHY1
    Member

    April, Thinking of you and your family, hoping you have all found some peace with eachother during this very difficult time at least for your mother-in-law.

    Kathy

    in reply to: Who is the mysterious Mr. Donner; + quackwatch #4135
    KATHY1
    Member

    Tah,

    Sorry, I guess I’m a little slow. I did a little research on the Donner party though and now I get it-you are very clever.

    I didn’t realize Carl Sagan had anything to do with the Twilight Zone I had only heard Rod Serling.

    On that note I’m going to let you guys go back to your banter. Thanks for keeping things interesting.

    Kathy

    in reply to: How long can my mom last? #4243
    KATHY1
    Member

    Deb, My mother’s situation sounded a little like your mom’s. She also had a doctor with not many MDS patients(if any). She was not ready to die and fought til the end. When my mom passed away in October she hhad gotten an infection in her lungs after 1 round of Vidaza. She was on a ventilator for about a week. When they took her off her lungs began to fail after two days. When she really began to struggle the doctors did give her medication so she would not be in pain. I thank God that my dad and all six of her children were there not only for her last moments but for her last week.

    Wishing you peace. You’ll be in my thoughts.

    Kathy

    in reply to: Who is the mysterious Mr. Donner; + quackwatch #4133
    KATHY1
    Member

    I too am getting a kick out of this. I have to admit though, I’m still trying to figure out what’s going on. Two added comments “To Serve Man”-wasn’t that the name of the cookbook in a Twilight Zone episode? and God help us if Hillary ever becomes president aaaaagh!

    Kathy

    in reply to: Update on me #3962
    KATHY1
    Member

    Sauzanne, It’s so great to hear good news. Wishing you continued success.

    Kathy

    in reply to: Trying to Cope #4202
    KATHY1
    Member

    Barbara, It’s so hard to know what to do especially since as you say Ron looks healthy. You have to do what you feel in your hearts. Know that you are in our thoughts and prayers.

    Kathy

    in reply to: Today #4022
    KATHY1
    Member

    Barbra, I can’t imagine anyone on this forum making you feel like you shouldn’t post because you are a “care giver”. It seems like at least half the members are care givers. If you shouldn’t be posting then I definitely shouldn’t be. As most know my mom passed away in October and coming back to the forum gives me a sense peace in a way. Just knowing that other people know what she went through is comforting. And even though she is gone I feel like I know so many of your stories I need to know how you are all doing.

    Enjoy your time with Ron. Do the things you want to do as long as he is feeling well. Life is just too short. I wish you many more years together.

    Kathy

    in reply to: I'VE BEEN THINKING ABOUT YOU ALL… #4102
    KATHY1
    Member

    Missy and everyone, This is my first time back on the forum in a number of weeks as well. My mom passed away in October and I don’t know why but I have been having a tougher time these past weeks. I feel like I’m going back to when she first passed. I also want everyone to know I think of you all often and wish you all well.

    Kathy

    in reply to: Dad Passed Away Last Night #3728
    KATHY1
    Member

    Dear Sad, I am so sorry to hear about your dad. You were right, he was waiting for the closing of the Florida house. He knew the time was right. You’ll be going through avery tough time for at least the next few months but remeber it will get easier to deal with your loss over time. He is no longer in pain. Find comfort with your family. You are in my thoughts and prayers.

    Kathy

    in reply to: New to the list #3754
    KATHY1
    Member

    Collene, Sorry to hear about your husband (especially so young). You will find much information from the people on this forum. Feel free to vent if you need to also. I’m hoping for the best for you and your husband.

    Kathy

Viewing 15 posts - 61 through 75 (of 115 total)

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