shirlsgirl's Replies | MDS Foundation

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January 22, 2007 at 1:47 am in reply to: Zarnestra #14778

shirlsgirl
Member

Hi Jack!

I just read your latest news. That’s just great! Mom and I are very happy for you. Thanks for sharing with us

Take good care,

Jody

December 30, 2006 at 1:05 am in reply to: Time for some good news? #16563

shirlsgirl
Member

Yay! Chuck…Happy skiing! When’s the trip to colorado? Unfortunately our Christmas has been a green one so far…hoping for some snow to fall. Have a great time!

Jody

December 23, 2006 at 3:17 pm in reply to: Jim's condition as of 12/06 #16514

shirlsgirl
Member

Fran, So good to hear your latest news. Merry Christmas and Happy New Year to you and Jim.

Take good care,

Jody

December 22, 2006 at 3:19 am in reply to: Mike passed away today #16481

shirlsgirl
Member

Oh no. I’m so sorry Sandy. Thinking of you and your family..

Jody

December 21, 2006 at 10:15 pm in reply to: Good Report #16468

shirlsgirl
Member

Hey Zoe,

I’m crossing my fingers! Hoping the good news continues for you too.

Best wishes,

Jody

December 21, 2006 at 10:09 pm in reply to: Good Report #16467

shirlsgirl
Member

Hi Terri, That’s wonderful! Mom and I are so thrilled for you and Bob. Hope you had a fun day with your grandsons. Merry Christmas!

Yay Suzanne! We’re so happy that your good news continues. Hope you and your family have a wonderful holiday season!

December 14, 2006 at 9:54 pm in reply to: our forum #16415

shirlsgirl
Member

Thank you Wombat!! How true. Merry Christmas to you and everyone else on this forum

Jody

December 4, 2006 at 4:21 pm in reply to: New Member #16210

shirlsgirl
Member

Hi again,

We’ve been racking our brain trying to remember how long she was on cyclosporin. Maybe 4 to 6 months?… maybe a little longer than that. She was on Prednisone at that time too.

Jody

December 2, 2006 at 11:15 pm in reply to: Yup, MDS #16200

shirlsgirl
Member

Hi Zoe,

Just want to wish you luck with your bmb. Hoping your doctor is right about the chromosome 7 deletion being a fluke. Please keep us posted.

Best wishes,

Jody

December 2, 2006 at 12:58 am in reply to: New Member #16208

shirlsgirl
Member

Hi Arlene,

My mom had a very good response with Cyclosporin she was on it for a few months and it raised her platelets from a low of 11 (i think?..approx.) to, at one point over 500. Eventually they stabilized in a close to normal/normal range. She experienced high blood pressure though which is a possible side effect, but controlled it with meds. When Mom started Gleevec she had to ween herself off of the cyclosporin.

I just reread your post and noticed that your husband’s platelets are at 136 000. Hey, that’s terrific! Does he have any side effects? You must be so thrilled that he is now transfusion free.

Hope it continues working for many more years to come!!

Take care,

Jody

November 30, 2006 at 5:40 pm in reply to: Jeff Beck #15488

shirlsgirl
Member

Oh no. How sad…I feel terribly for Jeff’s family. He fought so hard. My thoughts and prayers are with his family…

November 20, 2006 at 1:07 am in reply to: 2 years today #16086

shirlsgirl
Member

Congratulations Marsha!!

Jody

November 20, 2006 at 12:59 am in reply to: Bone Marrow interpretation ? #16098

shirlsgirl
Member

Hi Lydia,

Here is a great link that helped me with my mom’s abnormal chromosomes.

http://atlasgeneticsoncology.org/

When you click on the chromosome you’re interested in..(eg chromosome 5), you will be directed to a page where you can be more specific (ie. del 5q) and when you click on that you will get alot of information about etiology, treatment etc…

Philadelphia chromosome is t(9:22) …mom had half – t(9:21)

Sorry to hear that Revlimid is no longer helping your mom, hope you hear some positive news soon.

Take care,

Jody

November 15, 2006 at 3:32 am in reply to: SPAM MESSAGES: PLEASE READ #10909

shirlsgirl
Member

Hello, please remove “Skydadt” from this list…soliciting penile enhancements!!

Thank you,

Jody

November 15, 2006 at 2:38 am in reply to: Vidaza experience? #16017

shirlsgirl
Member

Loretta,

How wonderful! You must be so relieved to be transfusion free. It’s so nice to read some happy news!

Take care,

Jody
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