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Marsha
MemberCarrie,
I am so sorry for the sadness you and your family will feel in the next weeks and months, but for your dad to celebrate his birthday in heaven and at peace what a wonderful gift. Prayers are for you today and for a long time to find peace and comfort.
God Bless, MarshaMemberI know that Gleevec is used for CML; but was not available to me for my CMML either. Tho, I have heard that they are trying it out on some MDS/CMML patients.
Marsha
MemberMy thoughts and prayers are with you and your family.
God bless, Marsha
MemberCarrie,
Glad you are able to get some quality time with your Dad, prayers continue for you and your family to get thru this difficult time.
God Bless, Marsha
MemberJane,
I too want to add my condolences to you and your family on the loss of your brother. Peace and strength be with you as you continue the journey.
God Bless, Marsha
MemberCarrie,
My prayers are being sent to you and your family as you go thru these next few days. Sounds like your dad’s hospice is very peaceful. Hope you find the strength to get thru all of this.
God Bless, Marsha
MemberJim
I’m so very sorry about your mom. My prayers are with your family to find peace and strength to get thru these hard times. Your mom is at peace and no more suffering.
God Bless, Marsha
MemberI didn’t have a related match out of my 5 siblings, as are u I was very disappointed but I did find a donor thru the registry she is now my blood angel. Keep the faith, it is a bump but not one that can’t be handled. Prayers are with you all.
God Bless, MarshaMemberI know my congressman. Will be contacting him today. Thanks for your research and information. Very informative.
God Bless, Marsha
P.S. Have you noticed the number of younger people contracting CMML, I have. And it is alarming.
MemberMaribel,
I had CMML Dx in Feb 04, had a bone marrow transplant 11/04 an unrelated donor. I am from Wisconsin and went to the UW Hospital and Clinics, saw Dr Juckett. I am almost 9 mos out. I am fully grafted and making my own cells. my platlets are the last to come up but they are rising. Have a mild case of GVHD in my mouth and skin but can live with it. Trying to taper off meds slowly. I think since you have 2 different opinions, a 3rd would be wise. I know of people who are on a watch/wait program. I’m not saying that a BMT is the answer, but as far as I know it is the only cure. And with Ramiro being so young and otherwise healthy I would think that when he does need tx that would be an option. The “Hutch” is a very good place as well as MD Anderson. The UW Hospital/Clinics in Madison, WI follows the protocal of the “Hutch” in fact some of my lab work was sent there for analysis. Good luck to both of you.
God Bless, Marsha
MemberI too am so sorry to hear of Bill’s passing, I was so praying that he would have a successful transplant, at least he is at peace and no more suffering. My prayers now are for his wife and family to find the peace and strength to go on.
God Bless the Bill Wolter family, Marsha
MemberLola,
Take it day by day and if that doesn’t work take it hour by hour. But glad u had a successful transplant so far. Prayers continue for you to gain strength.God Bless, Marsha
MemberDoreen,
I too want to wish you the best, it is a tough road to follow but coming out the other side is worth it. Keep your positive attitude. Happy New Blood Birthday early.
God Bless, Marsha
MemberCarrie,
Congrats to your parents on their 34th anniversary. Sometimes when I have a big day the next day I tend to be really low-key so wouldn’t surprise me if your dad is the same way.Good luck to your fiance’ on his new position. Will say a prayer for him to help.
God Bless, Marsha
MemberDon,
I too want to send my prayers and sympathy on Karen’s passing. I pray God sends you the peace and comfort you will need.
God Bless, Marsha
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