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gemloyear
MemberHi, I’ve been trying to find those tests on the internet also, so far I havn’t found anything. Doc has been taking those on a regular basis. I’m going to try to find out at the next appt.Perhaps Neil will come on with some inf. Anyone know,help ?
Ellie
MemberEve, WE were so sorry to hear of bob’s passing. We pray that he is now at peace. Our sympathy to his family.
Ellie & Glen
MemberJim, What good news !!! You are the sucess story, wish there were more .have a wonderful trip.
Ellie
MemberKaren, YEs this has been such a sad week.It has been very depressing for me as well. I also hold back the bad news from my husband. I think it’s best to keep things as positive and stress free as possible. This is a good place for caregivers to learn and support one another.I have through this before with other long term illnesses, it never gets easier. one brave patient told me ” when your time comes God told me to accept it .” God bless all the caregivers.
Ellie
MemberAndrzej , I do appreciate your postings. You have prompted me to do further research on my own. I can’t say that I understand all of it, but it does help.Some of the more interesting sites are in the N.I.H. web site, Understanding cancer series: The Immune System, it gives an explanation of your ref. to enzymes re: DNA.Keep up your excellant postings.
We hope that your dad is doing well with his treatments.Ellie
MemberApril, Sincere sympathy to you and your family.
Ellie
MemberGood for you, but you had better share with the rest
of us. How does that mix with vidaza??E.L.
MemberHi Sarah, I have found that fevers , even low can be a very serious sign with mds. My husband was sick for 3 months this winter as the result of a sinous infection.This began as a side effect of a new rheumatoid med. that he started nov.11, he had a fever of 100.5_ 102.5 . He was presribed a pencilan antibiotic of 4000 mg. @ day.& /tylenol. The fever never let up always low grade. It then became pneumonia and a terrible allergic reaction. He was hosplized, given antibotics thru i.v.,meds. nebulized, o2 and sent home after 4 days still with a fever of 102.5. On antibotics month of Jan., o2 & meds. w/nebulizer. and another sinous infection, more antib. Also extreme edema, took over a month to leave his legs all over a little sinous infection & LOW temp. !!! By the way any temp. is a sign that one is fighting an infection .I’m begining to see that a person sometimes has to assert ones self to get attention.
Good luck EllieMemberTah, We are so happy to hear that your treatment is successful, hope that it continues for many years.
Ellie & Glen
MemberOur prayers Are with Barbra and her family at this very sad time.
Ellie
MemberThank you, I would also like to wish everyone on the forum a happy blessed Easter. We’re enjoying a relaxing day visiting with son @ daughter.
Ellie
MemberKaren, Thanks so much for the web sites. When I receive info which of interest I print it out & put it in my folders for future reference.I’m not that adapt at using the computer as yet, so would .probaley never be able to find the sites again.
Ellie
MemberYears ago while attending a medical seminar at the univ. of minnesota the key note speaker ( in reference to feelings of guilt) stated that no one should feel guilty of having an illness,aquired or hereditary as every one in the audience carried the potential of 20 genetic abnormalties in their dna.One Doc. said that long term enviormental exposure could cause these changes. i’m not sure if the medical community still feels this or not, it is something to consider.I believe my husband has been exposed to every chemical imaginable, it would be pretty diffcult to track. I guess the best we can do is to take care of our health as well as possible.It would be great if we all were scientists and could find a cure, but the one person I think that will is Andreiz.
Good luck with the research,Ellie
MemberHI Karen, this is a very interesting trial, where are they doing this, center & country.It seems hopefull.thanks for the info.
Ellie
MemberHI Jody, My husband takes B vitamins as they help to build blood cells. We don’t take any supplements with out checking with our hemo. doc.though.There are herbal supplement & vit. that interact with meds. so should not be taken togeather or at all. WE always consult with our docs. before taking anything not precribed.We do how ever take a high potency multi vitamin as we do feel more energetic and better for it.It’s always best to be cautious.
Ellie
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