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shirlsgirl
MemberMom was 59 or 60? The initial diagnosis was ITP, then possible early CMML and ITP. A couple of years later and 3 bmb’s later she is now MDS. (w/o further classification) Mom’s monocytes were never elevated beyond 1 x 10 9 so they ruled out the CMML.
shirlsgirl
MemberGloria,
I am so sorry.
Thinking of you and your family…
Jody
shirlsgirl
MemberI am so sorry Ellie. Please know that Mom and I are thinking of you. We are so saddened by your loss. Glen has fought so hard for so long. It really isn’t fair that such a rare illness has taken Glen. I’m so sorry.
Thinking of you and your family Ellie.
Hugs, Jody
shirlsgirl
MemberHi Caroline,
Thanks for the info.
Usually by now Occ. health nurses come around with their flu trolly to immunize us at work, guess that explains why they haven’t been around as yet. Please let me know if you hear anything else..and I’ll do the same.
Jody
here’s a flu link from Canadian Public Health:
http://www.phac-aspc.gc.ca/publicat/ccdr-rmtc/06vol32/acs-07/index.html
shirlsgirl
MemberOMG! TOO FUNNY! Jerry I laughed outloud with that…Renee (my daughter) came running in quick to see what the commotion was all about!
shirlsgirl
Membersorry, I attached the wrong link in my previous message, I meant to attach this one:
shirlsgirl
MemberI copied this from your blog Marla:
“I generally took a bowl or large cup of onion soup every hour throughout the day, and continued it for another 2 weeks”….
Seriously? 1 bowl every hr?? I think most people would not be able to follow this…You’d need a pretty honkin’ fridge to hold all of those onions and don’t onions cause gas?
shirlsgirl
MemberHi Janet,
Your mom is doing amazing. Did you say she’ll be 89??? I’m so happy that she’s doing so well!
Take care,
Jody
shirlsgirl
MemberHey Jeff!
We’re rooting for you! Sending positive thoughts and prayers your way. Take good care…you’re gonna beat this thing!
Jody
shirlsgirl
MemberHi Lindajo, 15 years..that’s great! Mom’s been getting the flu shot also…for the past couple of years. Her family doctor and hem. recommend that she get it and so far so good. Susi, glad to hear that it didn’t hurt
. Susan, how’s your Dad feeling?
I haven’t heard too much about the flu shots yet this year…wondering when they’ll start immunizing here in Ontario?
Jody
shirlsgirl
MemberFran and Jim,
Hoping for easier days ahead!
Take good care,
Jody
shirlsgirl
MemberHey Jeff,
Looking forward to hearing great news from you! Hoping that your road to recovery is a smooth one…all the best to you!
jody
shirlsgirl
MemberYay! That’s great news Susan!
shirlsgirl
Memberoh forgot to mention that one can live a long and full life with ITP!!!
shirlsgirl
MemberHi Susan,
Please try not to worry. I think the most common diagnosis, when there is a low platelet count, is ITP (Idiopathic Thrombocytopenia Purpura). It’s an immune condition where the body’s immune system destroys platelets. Especially if the platelets are the only blood line affected, or if everything else is normal. The oncologist will rule out other conditions that cause low platelets. Here’s an amazing site with alot of helpful info and a discussion forum also:
Take care,
Jody
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