shirlsgirl's Replies | MDS Foundation

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 15 posts - 61 through 75 (of 524 total)

← 1 2 3 4 5 6 … 33 34 35 →

Author

Posts
October 19, 2006 at 8:14 pm in reply to: Age at Diagnosis? #15633

shirlsgirl
Member

Mom was 59 or 60? The initial diagnosis was ITP, then possible early CMML and ITP. A couple of years later and 3 bmb’s later she is now MDS. (w/o further classification) Mom’s monocytes were never elevated beyond 1 x 10 9 so they ruled out the CMML.

October 19, 2006 at 7:06 pm in reply to: God Called Kornel Home #15442

shirlsgirl
Member

Gloria,

I am so sorry.

Thinking of you and your family…

Jody

October 18, 2006 at 5:57 pm in reply to: We lost the fight #15595

shirlsgirl
Member

I am so sorry Ellie. Please know that Mom and I are thinking of you. We are so saddened by your loss. Glen has fought so hard for so long. It really isn’t fair that such a rare illness has taken Glen. I’m so sorry.

Thinking of you and your family Ellie.

Hugs, Jody

October 13, 2006 at 2:51 pm in reply to: MDS Flu shots #15240

shirlsgirl
Member

Hi Caroline,

Thanks for the info.

Usually by now Occ. health nurses come around with their flu trolly to immunize us at work, guess that explains why they haven’t been around as yet. Please let me know if you hear anything else..and I’ll do the same.

Jody

here’s a flu link from Canadian Public Health:

http://www.phac-aspc.gc.ca/publicat/ccdr-rmtc/06vol32/acs-07/index.html

October 13, 2006 at 1:43 am in reply to: Hey Patti #15505

shirlsgirl
Member

OMG! TOO FUNNY! Jerry I laughed outloud with that…Renee (my daughter) came running in quick to see what the commotion was all about!

October 12, 2006 at 9:47 pm in reply to: Hey Patti #15500

shirlsgirl
Member

sorry, I attached the wrong link in my previous message, I meant to attach this one:

http://www.gmhc.org/health/nutrition/factsheets/bloat.html

October 12, 2006 at 9:37 pm in reply to: Hey Patti #15498

shirlsgirl
Member

I copied this from your blog Marla:

“I generally took a bowl or large cup of onion soup every hour throughout the day, and continued it for another 2 weeks”….

Seriously? 1 bowl every hr?? I think most people would not be able to follow this…You’d need a pretty honkin’ fridge to hold all of those onions and don’t onions cause gas?

http://digestive.niddk.nih.gov/ddiseases/pubs/gas/index.htm

October 12, 2006 at 12:59 am in reply to: Question on Revlimid #15409

shirlsgirl
Member

Hi Janet,

Your mom is doing amazing. Did you say she’ll be 89??? I’m so happy that she’s doing so well!

Take care,

Jody

October 12, 2006 at 12:51 am in reply to: Jeff Beck #15466

shirlsgirl
Member

Hey Jeff!

We’re rooting for you! Sending positive thoughts and prayers your way. Take good care…you’re gonna beat this thing!

Jody

October 5, 2006 at 4:24 pm in reply to: MDS Flu shots #15236

shirlsgirl
Member

Hi Lindajo, 15 years..that’s great! Mom’s been getting the flu shot also…for the past couple of years. Her family doctor and hem. recommend that she get it and so far so good. Susi, glad to hear that it didn’t hurt . Susan, how’s your Dad feeling?

I haven’t heard too much about the flu shots yet this year…wondering when they’ll start immunizing here in Ontario?

Jody

October 5, 2006 at 4:03 pm in reply to: What can I do? I need Help #15252

shirlsgirl
Member

Fran and Jim,

Hoping for easier days ahead!

Take good care,

Jody

October 5, 2006 at 3:59 pm in reply to: Day T -8 #15362

shirlsgirl
Member

Hey Jeff,

Looking forward to hearing great news from you! Hoping that your road to recovery is a smooth one…all the best to you!

jody

September 29, 2006 at 9:18 pm in reply to: Do low platelets always mean something bad? #15211

shirlsgirl
Member

Yay! That’s great news Susan!

September 28, 2006 at 5:28 pm in reply to: Do low platelets always mean something bad? #15204

shirlsgirl
Member

oh forgot to mention that one can live a long and full life with ITP!!!

September 28, 2006 at 5:27 pm in reply to: Do low platelets always mean something bad? #15203

shirlsgirl
Member

Hi Susan,

Please try not to worry. I think the most common diagnosis, when there is a low platelet count, is ITP (Idiopathic Thrombocytopenia Purpura). It’s an immune condition where the body’s immune system destroys platelets. Especially if the platelets are the only blood line affected, or if everything else is normal. The oncologist will rule out other conditions that cause low platelets. Here’s an amazing site with alot of helpful info and a discussion forum also:

http://www.pdsa.org

Take care,

Jody
Author

Posts