Kathryn's Replies | MDS Foundation

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August 28, 2005 at 6:09 pm in reply to: MDS advancing into AML #8493

Kathryn
Member

Hey Di, I know how drained and scared you are. The unknown can be so unnerving. Try not to think too far ahead and like the others said, stay strong and know that there is hope…

With my father, the doctor told him that his CMML had become acute when his blast percentage was much higher – 30%.

I will be praying for you & Scott. Take care.

Love,

Kathryn

August 28, 2005 at 2:05 am in reply to: Daddy's celebrating his birthday in heaven #8447

Kathryn
Member

Oh Carrie… it is so profound to think that he passed away on his birthday… surrounded w/ all of his family…& all that love. What a beautiful way to go Home.

May you find strength and peace in your memories and in knowing that he is free.

With love & hugs,

Kat.

August 27, 2005 at 11:14 pm in reply to: Daddy is still with us but it won't be long now #8440

Kathryn
Member

Hey Carrie, you know that my thoughts & prayers are with you and your family. He is so blessed to be surrounded with so much love and to have such a wonderful daughter. I am here for you.

Love,

Kat.

August 27, 2005 at 3:01 am in reply to: Two Years Today #8274

Kathryn
Member

Terri, I am so glad to see your post and that you & Bob are alright. I can only imagine how unnerving it must have been.

As always, you both are in my prayers.

Kathryn

August 27, 2005 at 2:52 am in reply to: .::Billy::.. #8429

Kathryn
Member

Oh, that is so wonderful!!!! I am so happy for all of you, particularly Billy!

With best wishes for many excellent adventures and an incredible life,

Kat.

August 27, 2005 at 2:46 am in reply to: GLEEVEC #8420

Kathryn
Member

My dad’s doc. didn’t recommend it for him either and he did have CMML. I can’t recall exactly why though… I know it is also used with Pulmonary Fibrosis as well.

Kat.

August 26, 2005 at 2:12 am in reply to: My Dad #8399

Kathryn
Member

Hi Melody,I just responded to your previous post last night…I am so sorry it was so late and I am so sorry for your loss. It is such a mixed bag of emotions you must be feeling, but I hope that above all, your heart finds peace in reflecting on memories & knowing that he is no longer suffering. What a blessing that he was surrounded with love when he passed on.

With love & prayers,

Kathryn

August 25, 2005 at 2:09 am in reply to: Two Years Today #8267

Kathryn
Member

Hey Terri, 2 years is definitely good!! Congrats. on your first grandchild!!! Though I have many years before I am a grandparent, it is something that I so look forward to!! Little rays of sunshine… angels from heaven. I have relied on my faith as well… It truly helps you through… gives you hope. It is such a rollercoaster ride, but keep those positive thoughts in the front of your mind! Celebrate life!

With Love,

Kathryn

August 25, 2005 at 1:58 am in reply to: New to MDS #8288

Kathryn
Member

Hi Melody, my father was on Thalidomide, but it didn’t work too well for him. He had some results w/ Vidaza & then Trisenox (arsenic trioxide). The Trisenox is apparently used for older patients who do not have other options. He had been waiting for an experimental drug to come available… It became available in July I believe, but unfortunately I do not know the name. My dad was tx. dependent and would occassionally recieve both platelets & blood. When he was in the hospital he had a reaction to the blood and retained a great deal of fluid. They hadn’t given him lasix, which they had done previously… It was scary & something to keep an eye on. Neil has given you some very important info. and do make sure you feel confident in his doc. as he is the gate keeper.

Also, if you locate your local Leukemia Society, they will send you an application to receive $500 to go toward medical expenses. I would imagine that the MDS-Foundation or the Leukemia Soc. or the American Cancer Society can recommend where your parents can get aid for the medications, etc.. My dad had stopped taking Thalidomide for a few days due to the costs until the pharmacy told my him that one of his policies would cover the it.

Well, I hope I’ve helped a little. I’m sending you & your dad my best wishes.

Take care,

Kathryn

August 25, 2005 at 1:40 am in reply to: blasts in peripheral blood #8053

Kathryn
Member

Hey Sarah, just wanted to let you know that I’m thinking about you and Charlie. My heart aches so for you guys. Second opinion are definitely a good thing. Knowledge is power. The more you know, the better decision you can make for his treatment. Please keep us posted and I will keep you both in my prayers.

Kathryn

August 25, 2005 at 1:33 am in reply to: Brother Moved to a better place in life #8379

Kathryn
Member

Jane, I am so saddened by the loss of your brother. I wish peace for you and your family.

God bless,

Kathryn

August 25, 2005 at 1:30 am in reply to: Day -6 #8198

Kathryn
Member

Hey Doreen, I’m praying for you and hoping that you’ll be home soon. Keep those positive thoughts going!

(((HUGS))) to you,

Kathryn

August 22, 2005 at 3:11 pm in reply to: The good news is over… #8345

Kathryn
Member

Oh Carrie, I am so sorry. I am here for you. You & your family are in my prayers.

w/ love, hugs, & my very best wishes,

Kat.

August 15, 2005 at 4:15 pm in reply to: New to Forum-Brother has MDS #8125

Kathryn
Member

Jane, I am sorry your brother is having a difficult time and I will be praying for better days for him.

Take care,

Kathryn

August 11, 2005 at 5:16 pm in reply to: out now #8230

Kathryn
Member

Hey Lola!!! I was checking up on you via your Caringbridge site last night. You have been on my mind. Such a lovely family to surround you! I’m so sorry you haven’t been feeling well. I am praying for you and wishing you a smooth recovery w/ each day feeling better & growing stronger.

Love,

Kathryn
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